Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 08-07-2014, 12:27 AM #1
kexpat kexpat is offline
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Join Date: Jul 2014
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8 yr Member
kexpat kexpat is offline
Junior Member
 
Join Date: Jul 2014
Posts: 7
8 yr Member
Default Visiting L.A/ Dr. Jordan/TOS?

Hi I've been browsing here for the past few months after a year of scouring the internet trying to find out what my condition was. I apoloize for this long post but I would really like to hear some feedback. Here's my story:

I began to have pain in my right thumb about 4-5 years ago, which I attributed to heavy mouse use, as I sit and work at a desk all day. I began alternating between right and left hand when using the mouse to alleviate some of th pain. Consequently, my left thumb began to hurt.
After a few months, the pain spread to my index, middle and sometimes my ring fingers, on both sides. Of course I immediately thought of carpal tunnel.
The pain was still manageable so I "worked" through it and began stretching and massaging my fingers often (strangely, there was no pain in my wrists).

This went on for about a year until my son was born and I developed golfer's elbow (both sides) which I attributed to picking up my son frequently. I had a cortisone shot in my left elbow which cleared it up but was ineffective in my right. After a few months and some research, decided to try prolotherapy on my right elbow, which was very effective. Had an MRI done through this point which a slight compression in cervical spine but nothing significant enough to warrant the kind of pain I was having with my hands. Was prescribed and began taking neurontin along with deep tissue massage and accupuncture but nothing helped much.

However, a month after that I developed a compression in my ulnar nerve (right), which left my ring and pinky with numbness and pins and needles. Did a lot of stretching exercises to no avail.

Beginning in 2014, boths arms (biceps and forearms) were getting numb with pins and needles, especially when I've been on the comuter for an extended period of time. Left side was more severe. It seems that sitting with my arms extended in front of me is the worst position. Had and EMG (clean) and elbow MRI which showed slight ulnar compression. I'm now using a mouse with the pad on my lap as this is the most comfortable position. Typing this difficult and all 10 fingers have shooting pain along with pins and needles.

I've also had a clicking left shoulder for as long as I can remember but only recently has it been hurting. The clicking occurs when I rotate it or move it back and forth.

I've been to 7 doctors here in Korea and no one seems to be able to diagnose my problem. Over the years, my pain has been spreading upward from my fingers to my arms and now my left shoulder.

Having read your posts and doing some research, I suspected it might be TOS or perhaps pec minor syndrome as my chest has some numbness as well. I've been doing a lot of stretches for this and it has heled minimally.

Finally to the point: I will be in L.A on vacation and decided to see Dr. Sheldon Jordan for consultation to see if he can shed some light on this.
1. Do you think he's the right shoice given my symptoms?
2. Is there another Dr. you think I should see? I'm reluctant to see a surgeon since it seems their first instinct is to go for surgery.
3. Dr. Sheldon's asst. said I'd be given a block (scalene I assume) and maybe botox thereafter. Any idea on the cost? I'm an expat so I have no U.S insurance and will be paying out of pocket.
4. I'm also planning to visit a chiro. Ken Best I think his name is. Any experience with him?

Thank you so much for reading this and I look forward to your comments.
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