Hi everyone, after being misdiagnosed by several top surgeons in the UK and seeing on here how everyone has to go through the same hell for years it's about time we got a campaign to make the NHS put together some sort of list of surgeons who actually know what they are talking about when it comes to Tos, I have just been diagnosed with bilateral neurogenic and arterial Tos about three and a half years after a physio told me that I had it, trouble was no one believed him, after many many scans and about the same amount of "experts" I finally got my diagnosis, any thoughts on what we can do to stop this farce? Many thanks...Richard

Welcome richsch.

Someone will be along to help.

hi Kitt, is it still what it is if everyone is telling you it isn't?

Hi
Just saw this post too.
Think might be a good idea to try to work out neurologists and surgeons who understand this in UK too like many others on this forum have done in US. I had such bad care in Glasgow that I had to move to live with my parents near London to get my diagnosis
Jenny