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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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10-03-2014, 11:12 PM | #1 | ||
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10-04-2014, 03:37 PM | #2 | ||
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Hi Hope -
I read your introduction (in your 1st post) and gosh...your symptoms and history really sound like TOS to me. Are you seeing a doctor who is highly specialized in TOS? I would think that an experienced TOS specialist would diagnosis you on the spot based on your symptoms and history alone. Otherwise, I wanted to mention, that my doctor told me that if the scalenes are highly scarred, they become almost tendon-like, and the Botox will not provide the chemodenervation and relaxation effect that would otherwise occur in normal muscle. Therefore, Botox will not work in these cases, even though the scalenes are the problem. Given that you've had 5 MVAs, with 4 of them being potential whiplash incidents... perhaps this is why the Botox is not working for you. Also, I've had an MRI/MRN of the brachial plexus. I have one-sided symptoms and we were "hoping" to find that the anterior scalene muscle had hypertrophied/enlarged on the symptomatic side, compared to the non-symptomatic side. This did not show up on the MRI. Instead, we found that the brachial plexus is exiting the scalene triangle high up (in the narrower part), with the upper trunk particularly high. It's an interesting finding since I tend to show more upper trunk symptoms. However, while such anatomy is thought to be a predisposing factor -- it is far from definitively diagnostic. IMHO... I think you should go forward w/ the MRI/MRN and also seek a second opinion from another TOS specialist, even if you have to travel to get to one. Hope this is helpful, and best of luck to you. |
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10-05-2014, 03:06 PM | #3 | ||
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HI
My BP mri showed neural edema which is irritation of the nerves. This was helpful in that was just one of the things pointing to a TOS diagnosis for me. The other was a scalene block (successful) but highly subjective and I wasn't in tremendous pain that day) and a physical exam by 3 different doctors who independently gave me a TOS diagnosis .Unfortunately botox didnt help me either. I am not pursuing surgery at the moment although had 3 consultations.I have had a little bit of success with PT, Trigger point injections and Lyrica. Occaisional Tramadol or a muscle relaxant. Still not enough for me to go back to work or be normal. JKL |
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10-06-2014, 12:44 AM | #4 | ||
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Have you tried chiropractic before? I have been doing it for a few months. It hasn't helped with my nerve issues but it has given me significant relief with my mid-upper back pain. Hope you find some relief soon |
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"Thanks for this!" says: | jkl626 (10-15-2014) |
10-15-2014, 07:06 PM | #5 | ||
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10-23-2014, 01:42 AM | #6 | ||
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10-23-2014, 01:18 PM | #7 | |||
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So chiro can't work on your neck , arms, elbows or pec minor at all?
Is that a work comp ins restriction or who set the restriction ? If you need an adjustment somewhere else to help overall healing that restriction is going to limit your progress.. Did chiro try to send his own evaluation/assessment to get restriction changed?
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10-06-2014, 12:32 AM | #8 | ||
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I'm pretty desperate right now and willing to try anything. I'm going to try rolfing next to see if that will bring any relief. I'm curious to know what type of treatment has worked best for you? I appreciate all of your input and I am going to have the MRN in a few weeks. I'm curious to see what, if anything, it will show. Take care |
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10-10-2014, 01:41 PM | #9 | ||
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10-11-2014, 08:33 PM | #10 | |||
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...and it was so useful in validating what I had been saying all along...it hurt here, there and there. 8 years of people telling me it was all in my head and all of a sudden I had proof in black & white. I wanted to take those images and show them to everyone!
Good luck with your surgery! |
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