Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-21-2014, 06:48 AM #11
Rfcomm Rfcomm is offline
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Default Brachial Plexus MRI Results Are Back

Well, Received call from my original Neurosurgeon last evening by phone. He told me the MRI was "negative" after two different reads. One being "his specialist" The neuro-pathways are there in tact he said.. I stated that we know the "pathways" are intact via the NCV test results.(duh) I did state that MRI's have been shown to be in-conclusive in diagnosing the type of injury symptoms I'm having. I had to push him farther as to the next step, (i.e. different imaging/SSEP's) I stated that we both agree that my arm/shoulder as some serious issues. He concurred, and offered to refer me to the "Best" guy he knows in NC, Head of Neurosurgery over at Duke Medical. I'll take the referral I guess, but my trust in him is pretty much non-existent at this time. Talk about feeling like a rat in a cage just now!
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Old 10-26-2014, 09:56 PM #12
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Quote:
Originally Posted by Rfcomm View Post
Well, Received call from my original Neurosurgeon last evening by phone. He told me the MRI was "negative" after two different reads. One being "his specialist" The neuro-pathways are there in tact he said.. I stated that we know the "pathways" are intact via the NCV test results.(duh) I did state that MRI's have been shown to be in-conclusive in diagnosing the type of injury symptoms I'm having. I had to push him farther as to the next step, (i.e. different imaging/SSEP's) I stated that we both agree that my arm/shoulder as some serious issues. He concurred, and offered to refer me to the "Best" guy he knows in NC, Head of Neurosurgery over at Duke Medical. I'll take the referral I guess, but my trust in him is pretty much non-existent at this time. Talk about feeling like a rat in a cage just now!
If then neuropathways are intact, that is good news, you have no permanent nerve damage. You would want to see a vascular surgeon or thoracic surgeon.
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Old 08-05-2015, 01:17 PM #13
Rfcomm Rfcomm is offline
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Unhappy Update after Pec Minor Release in Colorado

All, Here's the latest in my continuing saga.

I met with Neurosurgeons Dr. Sanders & Dr. Annest at Vascular Institute of the Rockies in Dec, 2014. After examination and EMG testing, Dr. Sanders stated that although I didn't have TOS, there was a procedure (Pec Minor Release) that should help with my range of motion. I scheduled the procedure and Dr. Annest performed the surgery a week later. I did gain about 45 degrees of lateral movement in my right arm/shoulder post surgery, however I have not experienced any reduction in regards to my severe chronic pain. I'm now 8 months post "Pec Minor Release" and 19 months since my initial ACDF surgery that caused my Brachial Plexus injury. I have gained some ROM & muscle mass back in my arm & shoulder but nowhere near where I was before this ordeal started. I'm currently working with my Dr. in trying to manage my chronic pain. I've been taking muscle relaxers, Cymbalta, Neurontin, Oxycodone & Oxycontin for the burning, twitching, itching, numbness & shooting pains. I've still yet to find an attorney that is willing to take on my potential malpractice case. I just don't understand how I can end up with a Brachial Plexus injury from a cervical surgery that supposedly went "fine". Talk about frustration on an epic scale!
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Old 08-05-2015, 03:06 PM #14
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I think its a plus that you have regained ROM and some muscle mass. Nerves take time to heal but they are apparently healing in your case. Best of luck!!
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