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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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06-04-2007, 01:37 PM | #1 | ||
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Hi
I know I haven't been around much lately. Lots of excuses but they are all boring. No one really cares how many hours I sleep each day or how slowly I move when I can move. Plus my voice has gotten very hoarse so Dragon is not doing as good of a job as it was. Anyway, I am scheduled to have the intrathecal morphine pump put in tomorrow morning at 7 am. My doctor's office just called and said that I am no longer eligible with my Private insurance company! We had just paid the May thru October premiums. Worker's comp denied the surgery & my lawyer wouldn't go to court to do an expedited appeal for me, SO my Private Insurance sent me a letter of approval with a disclaimer that I must be elibible at the time of surgery. Well, suddenly after approval for this $100,000. ++ procedure I am no longer eligible. I was injured and out of work 5 years and 3 months ago and they said my Cobra ended after 3 years, even though they continued to cover me an additional 3 yrs +. Now does that make sense? I wasn't on Cobra, that is why my insurance lasted over 5 years and NOT at Cobra rates ($350./month), it was $64/month because I am an employee of the insurance company. So then a supervisor tells me I am on disability and that ends in 5 years...still this is 5 years and 3 months, not 5 years. Up until I got the OK to cover my surgery I was covered. Human Resources said in a week they'll send out a cobra package and retro me back to June 1 and I'll be covered. Like I trust them on that. Also I can't go on my husbands insurance until July 1st IF they will even cover me. They don't have any pre-existing clause, and I won't know anything today. Still if I go on my husband's insurance, I will need preauthorization for the surgery and there is no time for that. So I told the doctors office to cancel it. They had checked with Medicare and my cost would be $992. deductible and 80% coverage. And I don't know if they'll cover the $3000. worth of medications I'll need every month, since I don't have medicare Part D for medicines. I hope you can all follow this mess. My husband is going to HR to try to get me on his insurance retro to June 1 because I've had services . I think of Olecyn when I see what a mess I'm in....sorry Cyndy, but I know you pay out of pocket for medical care too. I'm not sure what will happen but I'll keep you updated throught the day, if you'd like to hear this nightmare. It never stops, it is one night mare after another. I understand more and more how people who have RSD and TOS can commit suicide (not that I'd think of it). But it sure would end this nightmare. Work COmp hasn't paid a thing on me for 5 years this Sept. My lawyer never goes to court for me. I have $100,000's of dollars on liens. Unpaid pharmacies, doctors, outpatient surgicenters, botox injections, MRI's. I can't get ANY care for my TOS even though surgery is put into my doctors list of future medical needs. Thanks for letting me vent. I really needed to do that. ((hugs)) Hope Last edited by HopeLivesHere; 06-04-2007 at 08:03 PM. |
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06-04-2007, 02:31 PM | #2 | |||
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{{{{{Hope}}}}}
I'm so sorry about this mess. Insurance companies will look for anything to get out of paying. You probably paid into the insurance plan for 20+ years and never used it. Now you really need them and they have found a way to wiggle out of their responsibility! I really do care about how much you are suffering with this horrible disease of rsd and tos. I'll be praying for you today, that a good resolution to this mess can be found so you can proceed with your surgery tomorrow with peace of mind. Love, Martha |
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06-04-2007, 03:24 PM | #3 | |||
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hope,
i am going to try to call you on my way to the OT this afternoon; i'm on the fly right now and just have a sec to post this. i agree wholeheartedly (and in every sense of that word) with what martha just said. i hate it that they are pulling this nonsense with you. if i were you, i would be on the phone with the state insurance commissioner right about now. this is outrageous conduct on behalf of your insurance company from what you are telling us (i'd also like to know, exactly when did your doctor's office find out about this coverage issue? seems awfully last minute in the notice dep't; that may just be me though...). don't know if you've ever corresponded with arnold about your case. if you haven't, you should! if you have, call vanessa about this latest disgrace: 916.445.2841. write the governator @ office of the governor, state capitol, sacramento, CA 95814. people, unite! damn the man! i am so sorry you have to let tomorrow go. that by no means MEANS this is over for you, or that you won't ultimately get the permanent morphine pump, hope. where there's a will, there's a way. you have suffered for far too long. no more mrs, nice guy. no more smiling depression. so say i! alison |
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06-04-2007, 03:47 PM | #4 | |||
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write up {or type } a brief accounting & time line of what has happened to you.
email or mail it to your senator, legislator, or even the Pres or VP! It worked for Ada {dreambeliever128} http://neurotalk.psychcentral.com/member.php?u=1410} If you want more info send her a PM asking how she did it.
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06-04-2007, 04:10 PM | #5 | |||
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Oh, Hope...
I am so sorry to hear what they did to you... I know how much you were looking forward to this surgery and getting your life back in order... You must be devastated... Many Many Gentle to you.... Rant, Yell and Scream the best you can at those insurance people and do whatever is necessary to try and get that pump placed.... You are in my prayers today... God will see you thru this and you will be able to proceed with the surgery soon... If you can... Take the advice from Martha, Alison and Jo... You are in my prayers... To you Dawn P.S. Johanna has a Great Point.. If I can help you too.. Just let me know I will call or write for you too... Anything for you my Dear Friend...
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Live Well, Love Much, Laugh Often . Last edited by dawn3063; 06-04-2007 at 07:59 PM. Reason: To add my P.S. |
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06-04-2007, 06:34 PM | #6 | ||
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Hope, I sincerely from the bottom of my heart, just want you to know how sorry I am about everything. I am praying that you get much needed help. I pray one of these companies will come through and pay for the pump you so desparately need. You my friend are one reason I keep fighting for my rights with wc. They should be responsible for whatever care you need. Keep in touch my friend.
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06-04-2007, 06:36 PM | #7 | |||
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Hope, i have every finger and toe crossed for you. You are such a source of inspiration and positivie vibes to everyone here.
It is criminal the way you are being treated. If I can assist you in writing letters or calling, please let me know how... Johanna
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