Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-26-2014, 10:24 PM #1
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I have a fifteen year old daughter, if she gets TOS like me, I would bring her to Dr. Donahue in Boston.

Since your daughter is a softball player, I would also consider Dr. Pearl in Texas.

If she has vascular TOS, she probably needs surgery.

Either of these docs will take a couple of months to get seen, I would call and schedule an appointment ASAP.

You can get free plane tickets through Miracle Flights and stay at a Ronald McDonald house because she is a child.

Anyway, you kid would benefit from two working arms, I promise, just bring her to the best surgeon you can manage.
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Old 10-30-2014, 07:37 PM #2
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Default please consider good pt before any surgery

Hello there,
I have two now grown kids who had rib resection surgery several years ago for TOS arm and neck pain issues. My daughters rib grew back entirely.
I also have had rib resection for TOS, all 3 of us have cervical ribs.
I have had excellent new physical therapy the past 6 months and have had much improvement in my pain levels. Look for a physical therapist who specialises in neck trauma/issues-they should be knowledgeable about TOS. ALso, anyone trained in the Butler/Moseley 'Explain Pain' or NOIgroup about how the brain affects pain cycles.
If I'd had good p.t. 5 years ago I likely would not have had surgery, and I suspect my kids may not have either.

~Robin
www.rtosjourney.blogspot.com
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