Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-18-2015, 06:44 PM #11
jkl626 jkl626 is offline
Member
 
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
jkl626 jkl626 is offline
Member
 
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
Default

Quote:
Originally Posted by SnappleofDiscord View Post
Ugh sorry for your scapula pain!
I didn't break my scapula like you (which must have been s special dose of misery), but I too have some severe scapula winging with possible LTN injury.
Waiting hasn't helped, and my symptoms have only gotten worse. PT hasn't gone far, as most scapular stabilizing exercises further irritate the secondary problems Caused by it in my neck. I'm still searching for a doctor too.

I wouldn't wish this chase on everyone. I think you're right that most doctors are unfamiliar with this type of injury and scapula winging in general outside of a text book. I am endlessly frustrated by doctors telling me "they've never seen anything like it", and then referring me to a friend.


It's my understanding that basic EMG will only pick up a pronounced issue (i also had to do a chase to find someone willing to perform the EMG), and that it's a positive result is not always needed to diagnose LTN injury since it is so very easy to miss the nerve altogether.
I've got a negative results on my LTN EMG, but no matter what the print out says I still have a scapula you could rest a drink on and other symptoms of serratus dysfunction like trouble expanding my chest, fasiculations, shoulder instability, pain, etc.
I've been told nerve dysfunction and symptoms can happen from compression and chronic irritation/inflammation as well, and an EMG is testing for total compression, impingement, lesions, or severed nerves.
My symptoms seem to vary positionally and on how bad my compensating muscles are spasming. I can make the symptoms stop sometimes if I hold very still in a certain pose and never move, however, EMG isn't conducts in a comparison basis.

There's also some literature that I've found that puts together what seems like a fairly medically obvious case for scapular winging and LTN dysfunction without loss of nerve signal, in that the altered position and rhythm of the scapula compresses the brachial plexus, narrows the thoracic outlet, and grinds on muscles, tendons, and nerves it shouldn't be able to.
I'm too new in the forum to be allowed to post links in my comments, but I can message you some links to articles on this.

In your case there may be issues with the LTN being irritated by your scapular bursa (which may be remedied by some cortisone shots), scar tissue, or even bone spurs and change of shape from the original break. Even an inflamed irritated nerve from when the scapula was broken and untreated..

Being mostly confined to my house or bed because of the associated symptoms, I spend a lot of time researching how to Escape this hell cycle. I've turned to looking up doctors cited in medical literature..
Here's a few resources I'm looking in to chasing down myself as soon as this next round of doctors invariably bounces me...
Dr Nath- Houston
Dellon Institue- Baltimore and some others too
Washington University in St. Louis seems to have some winged scapula expertise as well.

I hope this helps you some.
I would be curious about the literature too. You can sometimes just post a link to it in your text. Otherwise you can send me a pm or an e-mail
and I can post it. Thanks,JKL
jkl626 is offline   Reply With QuoteReply With Quote

advertisement
Old 02-18-2015, 04:39 AM #12
SnappleofDiscord's Avatar
SnappleofDiscord SnappleofDiscord is offline
Junior Member
 
Join Date: Jan 2015
Location: On the Road
Posts: 27
8 yr Member
SnappleofDiscord SnappleofDiscord is offline
Junior Member
SnappleofDiscord's Avatar
 
Join Date: Jan 2015
Location: On the Road
Posts: 27
8 yr Member
Default

Wrote a big reply which may or may not show up due to Login time out. oy.
Booklover and Jkl626, I am still too new to send PM of links. Perhaps if you PM me first?
this is board is surprisingly strict for a support forum.

Key notes in rant that may or may not exist any longer.
-3 types of neurogenic TOS. Costoclavicular Syndrome, Scanlenus Anrtiuc Syndrome ("classic" neurogenic TOS) and Pectoralis Minor Syndrome.
-Costoclavicular TOS, the google term you want lacking direct links, is the compression of brachial plexus between first rib and clavicle, often seen in rolled shoulder, dislocated shoulder, and disrupted shoulder rhythm due to winged scapula.
-Disfigurement of shoulder structure through injury or break allowing it to slump forward compresses and/or irritates the nerves that allow you to protract the shoulder. It's a vicious cycle of pain and it likes to involve the neighbors such as the neck.
SnappleofDiscord is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
booklover (02-20-2015)
Old 08-16-2015, 12:00 AM #13
thortime thortime is offline
Junior Member
 
Join Date: Dec 2013
Posts: 31
10 yr Member
thortime thortime is offline
Junior Member
 
Join Date: Dec 2013
Posts: 31
10 yr Member
Default

Is anyone in LA? If so, may I ask which doctor you went to?
thortime is offline   Reply With QuoteReply With Quote
Old 08-17-2015, 07:06 PM #14
Akash Akash is offline
Member
 
Join Date: Jul 2014
Posts: 330
8 yr Member
Akash Akash is offline
Member
 
Join Date: Jul 2014
Posts: 330
8 yr Member
Default

Quote:
Originally Posted by SnappleofDiscord View Post
Wrote a big reply which may or may not show up due to Login time out. oy.
Booklover and Jkl626, I am still too new to send PM of links. Perhaps if you PM me first?
this is board is surprisingly strict for a support forum.

Key notes in rant that may or may not exist any longer.
-3 types of neurogenic TOS. Costoclavicular Syndrome, Scanlenus Anrtiuc Syndrome ("classic" neurogenic TOS) and Pectoralis Minor Syndrome.
-Costoclavicular TOS, the google term you want lacking direct links, is the compression of brachial plexus between first rib and clavicle, often seen in rolled shoulder, dislocated shoulder, and disrupted shoulder rhythm due to winged scapula.
-Disfigurement of shoulder structure through injury or break allowing it to slump forward compresses and/or irritates the nerves that allow you to protract the shoulder. It's a vicious cycle of pain and it likes to involve the neighbors such as the neck.
Hi SOD, you doing ok? Not seen you on the board.

I'd add SCM spasm to the above. Basically if anterior scalene and SCM spasm, they'll compress the subclavian vein. I think that's what happening to me along with the costoclavicular TOS.
Akash is offline   Reply With QuoteReply With Quote
Old 08-22-2015, 09:58 AM #15
jcechop jcechop is offline
Junior Member
 
Join Date: Jul 2015
Posts: 7
8 yr Member
jcechop jcechop is offline
Junior Member
 
Join Date: Jul 2015
Posts: 7
8 yr Member
Default Disappointed in this forum

Quote:
Originally Posted by SnappleofDiscord View Post
I am still too new to send PM of links. Perhaps if you PM me first?
this is board is surprisingly strict for a support forum.
I feel the same way SOD. I came here for help. I found someone who has had the same surgery from the same surgeon and would love to message with them. They even invited me to send them a PM so we could discuss it. Yet I can't PM because the guys who run this forum said I haven't posted enough. To that I asked how many posts did I need before it was turned on and they said they don't discuss that. So apparently there's no magic number, it's just whenever they want to turn it on. Meanwhile I'm sitting here in excruciating shoulder pain because an Internet sheriff won't let me find the help I've been invited to receive. I'm really disappointed that a support forum full of people in similar or even worse pain would be so strict that they wouldn't allow someone genuinely seeking help who had found someone that even asked them to send a PM to do so. It's sadistic to offer hope in the form of answers, allow someone to have it near their grasp, and then hold it just out of reach at then end of a stick like a carrot. End rant. Microphone dropped.
Turn on my PM function.
jcechop is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long Thoracic Nerve injury...will it heal? Scottyb825 General Health Conditions & Rare Disorders 12 07-15-2015 09:29 PM
Winged Scapula- Long Thoracic Nerve Injury Red Arrow General Health Conditions & Rare Disorders 2 11-18-2014 06:28 AM
Winged Scapula-Pain from dorsal scapular nerve damage zzebra Thoracic Outlet Syndrome 2 09-12-2012 10:21 AM
New and need winged scapula help runninfool Thoracic Outlet Syndrome 0 06-30-2011 08:10 AM
L5 Nerve root displacement and winged scapula Tim Drumm New Member Introductions 5 04-03-2008 09:42 PM


All times are GMT -5. The time now is 05:38 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.