[alabamabrands7]

I've recently gotten a TOS diagnosis from an orthopedic spine surgeon. He sent me to PT for a month and promised nerve conduction studies when I came back.
I don't know where to go from here?
I found a vascular surgeon familiar with TOS. From all I've read, people don't recommend you using anyone but the TOP doctors. Not sure if I'll be able to travel for treatment.
How do I know if someone local has enough experience?
How would I set up with a dr in another state? Just call them up and ask to be seen or do you usually have a local contact?

-----------------
Dealing with excruciating numbness, weakness and arm pain bilaterally for 8 years.
Neck pain. Two bulging disks.
Super tight pecs, scalenes

[curby]

Originally Posted by alabamabrands7

I've recently gotten a TOS diagnosis from an orthopedic spine surgeon. He sent me to PT for a month and promised nerve conduction studies when I came back.
I don't know where to go from here?
I found a vascular surgeon familiar with TOS. From all I've read, people don't recommend you using anyone but the TOP doctors. Not sure if I'll be able to travel for treatment.
How do I know if someone local has enough experience?
How would I set up with a dr in another state? Just call them up and ask to be seen or do you usually have a local contact?

-----------------
Dealing with excruciating numbness, weakness and arm pain bilaterally for 8 years.
Neck pain. Two bulging disks.
Super tight pecs, scalenes

A highly experienced tos doctor is one who treats hundreds of tos patients a year, not dozens. I'd want a tos specialist, not one merely "familiar with TOS" (I've learned that phrase means they read about it or remember a reference to it from a seminar). There's a list in the files section. It's even difficult to find PTs who treat tos properly; a lot of self education is sometimes necessary to discern if you are with the right practitioners. Yes, just call an out of state top tos doctor, see if they take your insurance, and explain you'd have to travel to be seen...the top tos docs are used to this and will walk you through how they handle out of town/state/country patients (their office can advise about where to stay, etc).

[alabamabrands7]

thank you!

[Jomar]

Check out all our TOS sticky threads.. learn as much as you can , then you’ll know if the dr, or PT people know what they are talking about..

http://neurotalk.psychcentral.com/thread84.html
http://neurotalk.psychcentral.com/thread125577.html
http://neurotalk.psychcentral.com/thread135.html