Hi TOSers,

I am having surgery at University of Virginia in TWO days w/Dr. Ken Cherry. I will let you know how it goes. To give some background in case it may help someone:

-Nov. 2013: excruciating breast/shoulder/armpit pain, tingling, itching. Everything from cancer to MS to thyroid was ruled out during MONTHS of testing. I also had blue veins across my chest, shoulders, and armpits.

April 2014: Tried PT...felt worse and started choking on foods while eating

June 2014: Tried different PT...this helped. They only did massage. I also got weekly myofascial massages which were helpful. But could not keep this up forever as it is $$$$$$$$! This PT was not covered by insurance, either.

July 2014: Went to UVA and Dr. heard bruit when raised my left arm. Of course when I went back later that month it was gone! The MRA I did also did not show obstruction. This was devastating as I thought I had finally found the problem...

Oct 2014: Back to UVA as I am no longer driving/exercising like I love to do/writing on chalkboard (I am a teacher). Desperate for help. Bring copies of articles by Dr. Collins showing that yes, I have some symptoms that may not be caused by TOS (red, painful eyes, feet tingling), but a lot of them (trouble swallowing, face pain) could be TOS related.

At this time, the first doctor I saw called in the surgeon who does TOS surgeries. He does this surgery for the UVA baseball team also. Anyway, he felt over my scalene and said I had a "fullness" there and also that where my artery is, is way too high, and in most people's it is much lower.

So, I am having the R side done first. Scalenes, rib resection, and P-minor, he also will look at costoclavicular ligament. I convinced him to do pec minor. He did not want to b/c he hates to give
"a pretty girl a scar". I said I don't care about that. I want to be able to drive, push the shopping cart, stroller, etc.


I should note that prior to my symptoms I had a child (2 months before) and had a horrendous case of mastitis which I am certain played a role in this.

Anyway- hope that can help someone. I will be updating after surgery. I hope I can get my life back. This last year has been horrible...to say the least.

Good luck! I am rooting for a quick recovery and good results.
Daesin

Best wishes for a easy recovery and great results.
Keep us updated when you feel able to.

Hope you're doing ok, I had my surgery on the 18th. Still very sore.

Hey- I am doing ok. I will type more later, but for now, I will say I am shocked at how much back pain I am having! Is this normal? It is basically right behind where I had the surgery on the right side. It hurts worse than the incisions or anything else. Other than this I am doing fine. Just taking Tylenol...no heavy duty stuff. More details later.

My back hurts too, and just had a mishap taking my jeans off. The insicion site is very painful and pulls when I try to move. Have you list sensation down the back of your arm. FInding sleeping very uncomfortable.