Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

 
 
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Old 11-25-2014, 10:17 PM #1
TimeFish576 TimeFish576 is offline
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Join Date: Nov 2014
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10 yr Member
TimeFish576 TimeFish576 is offline
New Member
 
Join Date: Nov 2014
Posts: 5
10 yr Member
Default Was Told To Consider TOS - My Symptoms

First post here - just turned 30 male

Sorry for the long post. I've been researching TOS and am getting confused about some of my symptoms. I found this forum and hope that I can be helped in the right direction. Reading some of your posts I'm glad my neurologist told me to consider TOS because years of waiting to find out whats wrong would kill me.

Main story below, short version first:
My nuerologist thinks it may be possible that I have TOS. After 2 xrays and 2 MRIs everything showed to be normal.
  • Was experience numbing/tingling/heavy sensations (like falling asleep) mainly on right side of body
  • symptoms became very bad for a few days
  • no pain during symptoms
  • was doing shoulder exercises to fix improve possible shoulder impingement/buritis (left shoulder)(PT not consulted). Think that this may have started or contributed to condition
  • symptoms improved but hands, palms turned red, sometimes sore (don't think its raynauds)
  • experienced tightness in chest near heart, felt like heart was beating harder, feeling lasted a week or so and is normal now
  • during chest tightness also felt tension in left temple. still sometimes.
  • some pain in left hand/fingers after turning red.
  • think it might be more vascular than neuro
  • feel sometimes like shoulders are weaker but no apparent strength loss when tested
  • grip in hands, mainly left, feels lessened. tend to fumble and drop things a bit more (not ruling out this is in my head)

Questions:
Does this sound like TOS?
If so is this a mild case and could it go away on its own?
Does it sound more vascular than neurological?
Should I get into physical therapy?
Why did it move from the right side to the left?
Could my bad left shoulder have been the cause of all this?
Can a pinched nerve or vein/artery in left shoulder cause sensations all over?


My symptoms that brought me to the doctor were for about a week prior I started experiencing a numbing/tingling/heavy feeling on the right side of my body. These symptoms came suddenly (started out light but got worse) and I had no trauma. What I was doing that I think may have brought this on (it may have been present and exacerbated by this) was shoulder exercises to fix what I think (thought) is or was impingement or buritis in my left shoulder. They included external and internal rotations, face pulls, cable rows, and shoulder dislocations. These were done with a band so it was light resistance. After my initial doctor visit, that night the symptoms became much worse. I went about 3 days with little to no sleep because I couldn't lay down without making the symptoms worse. Maybe anxiety made it worse I don't know. Luckily things improved greatly a few days later to where I was still experiencing numbness some in the face (teeth felt like I had novacane) but mostly heaviness in my right arm and leg. Over the next few weeks I still experienced some of the symptoms as they came and went but things were better. Not sure if it is related or not but at some point I leaned on my right leg for a while and that knee felt very strange for a while (like the leg would get tired easily, knee and below only). It is now better. I've done some exercise to get blood flowing and it seems fine (so does everything else after light cardio exercise). During all the symptoms I never seemed to lose strength.
Then about three weeks ago I went to my first neurologist visit. I'm not sure he believed my symptoms at first but thought I was fine and just had a pinched nerve maybe. Recommended I get a second MRI and come back in 2 weeks. It was after this that my hands (palms mainly also underside of toes) turned red. It didn't seem normal but it had just gotten cold and I was hoping that was it. Also during this time the symptoms moved to the left upper part of my body (I still experience it in the face sometimes). Three weeks later they are still red and slightly sore (some pain in the left hand, the joints of the middle and ring finger). It was around that time that I started waking up to the ring and pinkie fingers being asleep. Unlike previous symptoms if I started to move the fingers around the feeling would go away.
The MRI (cervical spine) was normal and he mentioned to consider TOS. If in a month the symptoms don't improve or get worse I would get into physical therapy. At the moment my main symptoms are the red hands, waking up ring and pinkie fallen asleep, slight loss of control in hands (fumbling, dropping things (may be just in my head)), slight pain in left hand sometimes. Also the left arm's pulse feels stronger. Like I can feel it more. Also the veins seem to be a bit more visible but I might be imagining it (im right handed so the left should be weaker). I probably going to call earlier to get into physical therapy because I want my shoulder looked at also (if its not related).

Any opinions, experiences, recommendations, please tell me. Thanks
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