Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 06-11-2007, 11:45 PM #21
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Nerve glides and info-
http://neurotalk.psychcentral.com/sh...2&postcount=11
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Old 06-12-2007, 03:35 AM #22
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Default its not supposed to hurt -therefore they dont know what they are doing

hi hairdresser,
towelhorse here, i dont know whether you have read any of the things that i have written, but essentially i had traction and it made me worse, then nerve glides, it made me much worse, then truncal strengthening , worse still, then work hardening agh!!!. then they called it chronic pain syndrome..

they do not know what is actually happening. my theory is that we are compromising the nerve that goes under the scapula (long thoracic nerve) every time we use our affected arm, everytime we lay on our backs, everytime we breathe deeply, everytime the clinician massages the area, everytime we sit and increase pressure on our diaphragm that causes our ribs to place more pressure on the nerve, all the time we increase our weight that places more pressure on our diaphragm etc., everytime we bend down to the ground and use our affected arm and then breathe which puts 3 times the pressure on that nerve. this in turn makes the arm unstabilised and then other compensating muscles (pectoralis minor) put pressure on the nerves to our hands. please, try putting your arm in a sling for a while and anything that hurts is bad, any drugs which give you the ability to do things which compromise the nerve are bad, anybody who tries to get you to do things that make your situation worse doesnt know what they are doing. i understand your position, i have been there, you are just trying anything that may make you better. focus on those things that improve your situation and don't succumb to the pressure to do the others regards towelhorse
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Old 06-12-2007, 07:38 AM #23
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Thanks so much to all of you. What a great support system. With hubby working 7 days a week lately and I don't like to say too much to my mom and dad, they are older and thier health is not good. I hate to worry them. My injury and wc and 3 years of not getting the proper help, I have gotten much worse. I am going to physio today, No more traction!! It's hard enough to cope without all of this added pain. I'm not even sure OCgirl if there is an mra around here. My doctor said an mri is planned of the plexus. I have emg(needle) testing the end of June. Yesterday my gabapentine was incresed, I had a sleepless night as well as the night before. I am staring this thing in the eye, no more deniel, doing things I shoudln't be doing pushing to hard. I have to learn to respect my pain. It's so hard, but the flareups are hell and knock me down for so long, and gives me absolutely no quality of life.Towelhorse I have read alot of your threads, I have had some pressure on my left side of my ribs(hurts) I thought it was a fat pain<LOL, is this related or could be related to tos?I don't know why it takes so long for the right medical help, I have appeals coming the end of August, not sure if I will get more proof that I belive this is and still all work related. At this stage I want some help in getting better.Thanks again

Last edited by hairdresser; 06-12-2007 at 07:45 AM. Reason: added to.
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Old 06-12-2007, 11:32 AM #24
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Quote:
Originally Posted by dabbo View Post

Di- why do you mix alcohol and water in ziplock bags?
I usually mix that stuff in a glass
LOL,
It makes a slush, and colder longer. I use to use a bag of peas too, conforms good when pliable as opposed to large ice cubes or ice pack.
Di
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Old 06-12-2007, 11:39 AM #25
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Went to physio today. I told the physiotherapists about all the pain, reaching very high levels and not being able to function. I am glad to say no more cervical traction!!! She took it easy on me and between increasing my gabapentine and the ultrasound, heat and ice my pain levels are back to about a level 6.Di I also have a bag of frozen peas, and lots of ice-paks. I will try your idea!!! I also asked the therapist about a mri verus a mra. She said she would and could answer questions about this on Thursday(some reasearch). You guys are so good to me. Honestly the support all have given is TRULY APPRECIATED FROM THE BOTTOM OF MY HEART. BIG HUGS< BUT GENTLE!!!
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Old 06-12-2007, 05:23 PM #26
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I like the alcohol in a baggy response LOL

MRI vs MRA
An MRI is only 2 deminsional
the 3d MRI/MRA is just that 3d. an incredible machine
The techs didn't even know what a 3d MRA was until I gave them the info on paper and they were oooing and ahhhing.

MRI's do NOT show TOS cmpressions per Dr. Williams
However, I had a 2d MRI/MRA as requested by the defense and it still showed the compressions.
Then they asked for a MRV (with dye) and it showed.
They are still denying me medical trreatment after 5 years.
So, yes, I'm paying for it in more ways than one.
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Old 06-12-2007, 06:07 PM #27
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Olecyn; thanks for telling me the difference between the mri and mra. Honestly I didn't know. I not even sure if there is a mra here?? I will ask. I asked what if things aren't coming all from my neck, What if the mri doesn't show anything? the therapist said then there will be more investigating. Do you think the emg with the needles inserted into muscles will tell them much? I came home from therapy today feeling some better, then went to pick up my newspaper in the driveway, I got alot of pain instantly in my neck, really bad headache. I took some of my zanaflex and used my icepak immediately, and I am feeling some better. I also took my increased dosage of gabapentine, it's not working as well, but helps to take the edge off. Thanks so much and thanks in advance for any additional comments or help.
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Old 06-12-2007, 09:57 PM #28
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Default The Best

Jane,
I'm sorry you continue to go through such pain. I hope you get the testing you need and they come up with the results so they can treat your problem appropriately.

You guys on this forum are the bestest ever for support.

Go TOS'rs

Hope
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Old 06-12-2007, 10:05 PM #29
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Nice to see a post from you Hope!
Take it easy though
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Old 06-13-2007, 06:58 AM #30
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Hope I am so glad to hear from you! I have been worried. I read that you are doing better, thank god and your doctor. Please take it easy, and know we will be here when your able to return. Honestly, take care and know you are missed terribly. Your pal Jane

Last edited by hairdresser; 06-13-2007 at 07:00 AM. Reason: added too
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