Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-09-2015, 09:54 PM #11
Bobby78 Bobby78 is offline
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Originally Posted by Hiker View Post
Bobby78,

sorry to hear you are not doing well.
Assuming you excluded all the "other" possible causes of pain (spinal, vascular, neurological disease etc), the pain must be caused by a nerve injury due to compression and/or overstretching.
From what I found out (the hard way), no amount of PT and stretching is going to help as it just causes more compression and stretching.

For me to start making any progress, I needed to give the nerves a chance to calm down first.
Which meant no computer work (eliminate the original cause), not doing movements which cause overstretching (like reaching overhead), relaxation and breathing exercises (to relax neck/shoulder muscles) multiple times per day. Most important is not to do anything that increases pain.
After a couple of months my pain level was down and I was able to resume some stretching/strengthening.
Interested in your thoughts. You said before that your symptoms were actually reproduced with "correct posture". I'm the same. Whenever I sit my shoulders back, "like I'm supposed to", I get a drastic increase in numbnes/tingling to the right small and ring finger. What's up there?
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Old 02-09-2015, 11:06 PM #12
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Interested in your thoughts. You said before that your symptoms were actually reproduced with "correct posture". I'm the same. Whenever I sit my shoulders back, "like I'm supposed to", I get a drastic increase in numbnes/tingling to the right small and ring finger. What's up there?
Right. For several months I had it so bad I was unable to even assume the "correct" posture without causing hand numbness and arm weakness.
I suppose this is the way an injured nerve reacts to any additional stretch/pressure.
In the last couple of months as my pain went down so did the numbness.
In fact, I can now bring my shoulders back without triggering numbness or weakness. A strong stretch still causes numbness though so I only do gentle stretching (could not tolerate any stretch during my worst).
I still have loss of pulse when bringing shoulders back so I am assuming the compression still occurs in this position, but the nerves tolerate it better.
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Old 02-09-2015, 11:09 PM #13
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Are you meaning rigid military type posture? shoulders held way back?

You might try this-
[An introduction to the Alexander Technique ]
https://www.youtube.com/watch?v=-IoFyr-PSNM
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Old 02-10-2015, 02:23 AM #14
Hiker Hiker is offline
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Are you meaning rigid military type posture? shoulders held way back?

You might try this-
[An introduction to the Alexander Technique ]
https://www.youtube.com/watch?v=-IoFyr-PSNM
Yes, this is a problematic posture for me. Last summer I tried to keep this posture for a few days. Ended up with major bicep weakness in both arms.

I read a book on Alexander Technique a while back. I tried following it for a week or two, but it did not seem to do much. But I suppose it might help others.
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Old 02-10-2015, 05:21 PM #15
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Hi, Just wanted to give you some words of encouragement. It sounds like you are in a really rough spot. I can relate to how difficult it is to have these types of medical problems when you're young (I'm 37). I had arterial TOS, so I was in a different boat, but I have had some real improvements in my functioning through proper diagnosis and surgery (with Dr. Thompson in St. Louis), PT, and trying to make my daily activities less stressful on my shoulder area (posture, repetitive movements, etc.). My pain is extremely manageable, and TOS really doesn't limit my daily activities at all. I know each case is unique, but I hope you will be able to get some relief like I have.
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Old 02-10-2015, 06:38 PM #16
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Hi, Just wanted to give you some words of encouragement. It sounds like you are in a really rough spot. I can relate to how difficult it is to have these types of medical problems when you're young (I'm 37). I had arterial TOS, so I was in a different boat, but I have had some real improvements in my functioning through proper diagnosis and surgery (with Dr. Thompson in St. Louis), PT, and trying to make my daily activities less stressful on my shoulder area (posture, repetitive movements, etc.). My pain is extremely manageable, and TOS really doesn't limit my daily activities at all. I know each case is unique, but I hope you will be able to get some relief like I have.
Thanks so much for the feedback! Glad to hear some positives. I had PT yesterday, and then and hour of massage today. I think the massage did better than PT. I felt some relief in my neck, finally letting me feel like I could drop my shoulders without so much involuntary tension.
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Old 02-11-2015, 11:52 PM #17
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I had tissue massage yesterday...not PT. I slept good last night for the first time in a while. Today was the first time time I felt "something" different, in a positive way I think.
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Old 02-12-2015, 08:52 PM #18
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I had tissue massage yesterday...not PT. I slept good last night for the first time in a while. Today was the first time time I felt "something" different, in a positive way I think.
Wonderful! Hold on to that feeling. You have a long road ahead and these moments don't happen as often as we would like.
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Old 02-15-2015, 11:29 AM #19
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I had tissue massage yesterday...not PT. I slept good last night for the first time in a while. Today was the first time time I felt "something" different, in a positive way I think.
Hi Bobby
I am new here as well. Almost 2 weeks post rib resection surgery with Dr.Donahue. I have been dealing with TOS for 2 years, I had seen 3 neurologists, 2 thoracic surgeons, rheumatologist and Dr.Donahue was the only doc to quickly diagnose compression through ct scan last June. It showed the compression of the arteries. I had PT and chiro for months and botox shots to no avail. I saw one PT that did massage/fascial manipulation and that did help short term but stiff posture or stretching would bring back the pain and nerves. I am optimistic the surgery will help. I have pretty good range of motion but a lot of numbness still in my arm and hand. He said it should subside in the next couple of months but nerves are slow to recover. He found a lot of scar tissue that pt/botox would not have helped with. Dr.Donahue is very attentive and gives you all of the time for a thorough exam (well over an hour for initial exam). He offers all options and does not jump into surgery hastily. It did take some time to see him and a couple of months for the surgery. I am highly impressed with him and his team.
I do sympathize with you . I am a hands on technician and it is hard not being able to do all that you used to do. If you find relief with the message grasp onto that as Daesin eluded to any relief is appreciated greatly. I hope any of this helps. I am really relieved to have found this forum to realize there are alot of others that are going through the same issues.
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Old 02-16-2015, 01:26 AM #20
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Hi Bobby
I am new here as well. Almost 2 weeks post rib resection surgery with Dr.Donahue. I have been dealing with TOS for 2 years, I had seen 3 neurologists, 2 thoracic surgeons, rheumatologist and Dr.Donahue was the only doc to quickly diagnose compression through ct scan last June. It showed the compression of the arteries. I had PT and chiro for months and botox shots to no avail. I saw one PT that did massage/fascial manipulation and that did help short term but stiff posture or stretching would bring back the pain and nerves. I am optimistic the surgery will help. I have pretty good range of motion but a lot of numbness still in my arm and hand. He said it should subside in the next couple of months but nerves are slow to recover. He found a lot of scar tissue that pt/botox would not have helped with. Dr.Donahue is very attentive and gives you all of the time for a thorough exam (well over an hour for initial exam). He offers all options and does not jump into surgery hastily. It did take some time to see him and a couple of months for the surgery. I am highly impressed with him and his team.
I do sympathize with you . I am a hands on technician and it is hard not being able to do all that you used to do. If you find relief with the message grasp onto that as Daesin eluded to any relief is appreciated greatly. I hope any of this helps. I am really relieved to have found this forum to realize there are alot of others that are going through the same issues.
Thanks. It's good to have other people's input with their experiences. I wish you a strong post-op recovery!

As of now, I'm continuing stretches, massage, and light workouts. I've wondered about arterial compression? My right radial pulse seemingly diminishes with an exaggerated "correct" shoulder posture. This is my dominant side and the origin of symptoms. Similar to what Hiker has mentioned. Anyways...

Hold strong on the recovery and thanks for the reply!
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