Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-03-2015, 05:13 PM #21
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I would start with floor only and see how it goes, if that works well then try a rolled up towel, take it slow and easy...
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Old 03-03-2015, 05:28 PM #22
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ok will do
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Old 03-06-2015, 07:58 PM #23
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After my surgery,my fingers and forearm were very numb and had parasthesias (sp?) like I was in a huge flare. I put pillows under my left elbow and that helped a little. I agree with Donahue's remark about nerves being ranked around and flaring it up. It was confirmation to me that a lot of my TOS problems come from my upper forearm and distal arm (on the inside).
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Old 03-12-2015, 10:04 PM #24
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So we are a little past 4 wks post op and I will have to say things are getting better. Slowly....so very slow but if I look at the big picture Sara is doing better. The trileptal is working ok and she gets blood work tomorrow. if its normal we can increase the dose and hopefully it will work even better. She is slowly starting to wean herself off of Percocet. No easy task. Saras tolerance to Percocet grew quickly and she was up to 10/325 every 4 hrs in no time. Now the dr says he thinks she is having pain from narcotic withdrawal more then anything. I tend to agree as we have unfortunately been down this road before when she had a disc herniation and the signs are the same so we are weaning off of it and are now down to Percocet 5s 3 to 4 x a day. She is doing well. We took a walk yesterday and this morning she changed the sheets on her bed. She has developed this nagging rash and I was sure she had RSD but the dr said no. I think I needed to hear him say that because I am a lot more relaxed and as a result so is sara. For the first time since Sara was diagnosed I feel like its going to get better. There are more good days then bad now. I will check in once a wk or so just for an update. Not that I think anyone is really all that excited to hear about Sara but because it seems so many of these threads get started and and then fade away without ever really knowing if and how they improved. If you are reading this for the first time and are newly diagnosed have hope. Find a good dr. Do whatever it takes to find a good dr. Travel if you have to. Pay out of network insurance if you have to. If you have found a good Dr and are thinking about or getting ready for a rib resection. Have hope but be prepared for a serious surgery. Its not easy. Have patience. Go slow with recovery and have hope.!!!! Talk to you next wk
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