NeuroTalk Support Groups - Use of regenerative technologies for TOS

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)

- - Use of regenerative technologies for TOS (https://www.neurotalk.org/thoracic-outlet-syndrome/218985-regenerative-technologies-tos.html)

Feedback from Dr. Miller Consult?

Quote:

Originally Posted by jheumann (Post 1136486)

a number of doctors out there are showing that they can decrease scar tissue and increase our new organic tissue using PRP or stem cells. If scar tissue is a problem in thoracic outlet syndrome then it would make sense at least attempt this. I spoke to Dr Hugh Gelabert at UCLA's mentions this and this made sense to me because I have heard of stem cells converting heart attack scar tissue to actual heart muscle tissue. He does not have experience or numbers to discuss with me about it but I am on the lookout. I have a consultation with Dr Miller that is here in the Los Angeles and Orange County area. apparently he does PRP injections for this TOS.

Any comments?

Hello J Heumann,

I am interested in your feedback from your consult with Dr. Miller. I have longstanding TOS, bilateral scalenectomy/pec minor and now believe that I have scar tissue in upper left portion of brachial plexus. I had one revision surgery with Dr. Gelabert- it initially helped but know I think that scar tissue grew back after a year. Do you have information/sources that I can read about regarding the PRP injections? Hopefully you are doing better?? What can you tell me about your experience with Dr. Miller. Where is he located? What is his speciality etc...

Thank you
MarcB
Santa Barbara
Bilateral Scalenctomy first rib resections
Bilateral Pec Minor

His name is Dr Lawrence Miller. He is in Beverly Hills, Long Beach, and Santa Ana. He requested PRP for the scalenes, no word back yet. He said if my pain is severe enousgh, f it, get the surgery. :confused:

PRP or A2M may help

My issue is more the middle scalenes as far as we can tell. Not only that, but I have a nice fibrous band from a CT cervical process that has developed a connection to the 1st rib. So, while I would pursue the PRP or A2M (Sheldon Jordan), I have a built up obstruction that is hard to work around, o surgery of some sort is my option, perhaps with PRP later for spasms, or A2M which is suppose to relieve inflammation, as per Sheldon Jordan. I had PRP for my anterior scalene, no noticeable difference.

Quote:

Originally Posted by 16rhonda (Post 1141570)

I had some prp injections in my knees for arthritis pain and ankle for which was thought to be from peroneal tendonitis but now know is tibial nerve compression (tarsal tunnel).
What I have read about prp and told by the Dr who did this on me, was it helps to heal your tendon that are weakened from injurys or loose its. It will never heal to its original state but can strenghten tendons by helping to form scar tissue. It did help my knee pain short term but did nothing for my ankle Bc its nerve comp not a tendon problem.
So, I dont know how it could help tos where there usually is already a lot of scar tissue involved and this is what's compressing the nerves. Tos is not a tendon problem.
Watch out for false advertising! Some drs promote prp and prolotherapy as curing just
about everything! I wish it were true, as I have spent $18,000, most of my savings, on prolotherapy alone. Most insurance co.s do not pay for these treatments, mine didn't and I have one of the top rated plans.

about everything! I wish it were true, as I have spent 18,000

Hi 16r honda, can you tell me about from where you got your prolo done and what your experience was?

Any results on TOS Therapy

Quote:

Originally Posted by jheumann (Post 1179576)

Hello Jheumann, we traded messages a few years back. I wanted to know if you had any success with the PRP to reduce the scar tissue associated with you TOS? I'm hoping you've found some relief! You also mention in your posts that you have a fibrous band in the CT cervical process. How did they diagnose that? Did you do neurography? If so, any recommendations? I am hoping to follow up with Dr. Gelabert in the next month or so to see if there is anything to be done about post surgical scar tissue and pain associated with post surgery ( had surgery 5 years ago). Still have daily pain and severe limitations. I also found the Centeno Clinic in Colorado for PRP. Not sure if you have any information/experience with them. Thanks for any information. Marc