Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-30-2006, 07:23 AM #1
Rachael Rachael is offline
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Default I finally found you. Some news

HI Everyone....I have finally found this site again. This is wonderful. I was Rachael from Canada in the other BT site. A bit of great news...I finally found someone here that will DX TOS. I am travelling about 5 hours to get to him, but I see him on Thursday. I have gone back to school and seem to be in a major flare that I am not sure how it came on this time. I usally know what I did to bring one on. I am sitting at a desk in accounting for 4 hours writing...does that make sense?
What do I tell this doc and how do I approach him to make sure this is a successful visit? I have waited a long time for this....
Next question: You may remember me telling you that I had filed a complaint against my former company with Human Rights. They wish to settle...should I get a lawyer? How do I make sure my rights are not violated again?
W/C has been amazing. 100% support from them. Shocking I know. I was the one who researched and found Dr. Bethune for TOS demanded from my family doc I see him..it was granted. W/C wished me loads a luck and said they hoped he would help me. wow EH? I have missed the info on this site. You are all amazing people who have given me the best of advice.
Rach
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Old 10-03-2006, 05:39 PM #2
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Hi Rachael-
I'm glad you found us here.

I hope your trip to that dr is a good one.
We lost all the old threads and posts on the other site or I would dig some of the info up for you about appointments/results ect.

as far as the settlement , maybe call around and interview with some attys {to see what they say about the case- get as much info as you can at those first meetings} check with many before deciding anything.
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Old 10-03-2006, 07:09 PM #3
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Default Hi Rachael..

Welcome back... Jo's advise is good.. Keep us posted on your Dr's appt...
((Hugs)) Dawn
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Old 10-03-2006, 11:24 PM #4
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Default Welcome here

Hi Rachael,
As Jo said I agree, interview some attorneies about the settlement. There are many future problems that can arise if you don't have someone to advise you on a proper wording of a settlement. Don't lose on something as they will favor theirself, not you and you don't want to get burned.

I have been through US settlements for everything from workers comp issues to civil liability in the work place.
Glad to see you, I missed everyone over the summer.
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Old 10-04-2006, 12:53 PM #5
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Default Hi All

Hi Guys....I decided not to settle for anything until I see an attorny. I have been in contact with one and meet with him next week. The settlement they offered is nothing compared to what I have already lost.
I see the doc tomorrow. I am excited and nervous all at once. I am in a bit of a flare up so the long drive is not something I am looking forward too and I am hoping he will actually help me. I found his name on the tellmeabouttos website, but I see you guys have him listed here on BT2. After 3 years of this chronic pain I really need some answers...you know..someone who will listen to me and really understand what I am going through and want to help. I hope he is not like the others and dismiss it all to RSI. I have been off work for nearly a year now and it has not gone away. I do nothing repetitive now and I still flare up real good at times. I truely feel as though he is my last hope. I pray this trip isn't for nothing...I really want my life back. I know you all understand that.

RAch
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Old 10-04-2006, 01:28 PM #6
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Good luck with your appt and the long drive... ooochy

Do you know how much time has been allowed for your appt??

that might be an indication of how exstensive his exam will be.

jot down all of your symptoms so none are forgotten.
and what specific motions or movements increase pain or cause pain after {delayed pain}

are you taking your xrays /MRIs with you or sent them ahead ?
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Old 10-04-2006, 01:52 PM #7
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Default Jo55

My doc here assures me he has everything. I did have my P/T write him a detailed letter since he is the only one who has done anything to help me for the past year. I have all my symptoms typed out...started that a long time ago so I need to do is print. I have no idea how long I have with him but I refuse to take any pain meds until I leave his office.....
Can you tell me something? Would sitting at a desk writing for 4 hours straight increase your symptoms? Its the only thing I can think of for this flare up.

Rach
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Old 10-04-2006, 02:04 PM #8
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For me it would - I have a heck of a time writing - fingers don't like that at all {gets messy fast} i do better at the keyboard.

alot depends on your desk & chair height and how you are sitting too.

leaning forward or to the side for very long seem to bother me.
plus the head forward/arms forward position for certain amounts of time.
like holding a book to read {even paperbacks}- it accumulates for me first time I can do maybe a hr , but at a later time the same day, it will be a less time and so on- so i use a pillow or prop it on my lap.
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Old 10-04-2006, 04:05 PM #9
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Default Flare???

Oh my GOD I would not be able to do anything for a week!!!!!!!!!!!!!!!! Oh yeah that would cause a flare girl!!!!

Look after yourself you need to take breaks every 15-20 mins to stretch use your exercise ball....I guess I assume we all have one that collects dust....but my MT said that if you put it against a wall and sit with your back to it then you can stretch your arm out behind you and get a good relaxing....not pulling stretch.....also pull your shoulder blades together lightly......and push back on the ball it might take some of the dust off of it.....lol

Best of luck at the doctor.......and soak in a hot bathtub with epsom salts and sea salt with lavender to relax when you get home it will help relax your muscles....or massage.....whatever is accessable to you.....


your fellow canuck....
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