Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 07-20-2015, 12:50 AM #1
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Originally Posted by thortime View Post
Have you looked into shoulder nerve injuries? I think, for example, the long thoracic nerve supplies the serratus anterior muscle. When this doesn't function properly, it can cause winging of the scapula.

As mentioned above, I'm not a doctor. There are probably lots of conditions that can cause your symptoms (the more I read, the more possibilities!) Have you seen an orthopedic doctor who specializes in the shoulder?
Good advice there. I'd look in to this one more thoroughly. I have similar sx but my nerve conduction/ emg test were normal. Eleven years later neurosurgeon requested they were redone before putting in a spinal cord neurostimulator. Of course, they found long thoracic nerve palsy and chronic dennervation of anterior serratus muscle! Apparently, it's commonly overlooked as they do not test far enough down the nerve tree. Too late for me to look at any remedial surgery, though may have been from the start as likely mechanism was traction.Good luck, booklover
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Old 07-21-2015, 01:15 AM #2
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Good advice there. I'd look in to this one more thoroughly. I have similar sx but my nerve conduction/ emg test were normal. Eleven years later neurosurgeon requested they were redone before putting in a spinal cord neurostimulator. Of course, they found long thoracic nerve palsy and chronic dennervation of anterior serratus muscle! Apparently, it's commonly overlooked as they do not test far enough down the nerve tree. Too late for me to look at any remedial surgery, though may have been from the start as likely mechanism was traction.Good luck, booklover

Oh wow. So there is nothing for you to work towards as far as improving symptoms? I wasn't aware that nerve injuries were so permanent. So let's say, in the event that I do have an injury to the long thoracic nerve, would my only option be surgery? I absolutely HATE surgery. everything about it. Electing to have surgery on my shoulder is what put me into this situation in the first place.
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Old 07-21-2015, 01:49 AM #3
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Oh wow. So there is nothing for you to work towards as far as improving symptoms? I wasn't aware that nerve injuries were so permanent. So let's say, in the event that I do have an injury to the long thoracic nerve, would my only option be surgery? I absolutely HATE surgery. everything about it. Electing to have surgery on my shoulder is what put me into this situation in the first place.
I'm not a good person to ask about surgery of LTN as in Melbourne Australia when I injured the LTN 20yrs ago-there wasn't the expertise here to even get any advice it's so rare. My understanding is surgery would only help for impingement/ obstruction.

My focus has been on functional restoration through clinical pilates, neurophysio /bobath technique, occupational therapy etc. Still pain remains a major issue for me and poor use of arm in raised position. However, I have hardly any winging after all my hard work and it makes a big difference to function at waist level. Don't be disheartened, my anatomy made me susceptible to developing bilateral TOS over time so your situation may have a much more optimistic outlook. booklover
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Old 07-21-2015, 09:55 AM #4
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I'm not a good person to ask about surgery of LTN as in Melbourne Australia when I injured the LTN 20yrs ago-there wasn't the expertise here to even get any advice it's so rare. My understanding is surgery would only help for impingement/ obstruction.

My focus has been on functional restoration through clinical pilates, neurophysio /bobath technique, occupational therapy etc. Still pain remains a major issue for me and poor use of arm in raised position. However, I have hardly any winging after all my hard work and it makes a big difference to function at waist level. Don't be disheartened, my anatomy made me susceptible to developing bilateral TOS over time so your situation may have a much more optimistic outlook. booklover
What about your anatomy made you susceptible? Do you have that rib? Im glad to hear that you are improving your situation. Do you feel that its possible in your future to retun to 100% normal function?
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Old 07-23-2015, 10:09 PM #5
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What about your anatomy made you susceptible? Do you have that rib? I'm glad to hear that you are improving your situation. Do you feel that its possible in your future to retun to 100% normal function?
Apparently I had an extra cervical disc (a long Neck) and developed fibrous bands on either side to support it which squashed my arteries and nerves. No I have a lot of permanent damage done before the decompression, which is one of the risks of long term compression of sensitive structures. That is, they don't fully recover once you release the pressure. Besides, I had the traction damage as well. The most recovery usually occurs in the first year or so following surgery...I can't really comment further on alternative to surgical options as an active strategy as i only put it off because of risk to right arm as I only had partial use of left...booklover
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Old 07-24-2015, 02:53 PM #6
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Hi Booklover, I seem to have injured my LTN in a fall from a bike several years back and have been working on reactivating my right serratus. I can feel a muscle contracting beneath my armpit even if i move my right arm up. Does that mean I can rehab the muscle? Any idea of teh time I'd take and the specific exercises and other muscles to focus on along with it?Also what wre your symptoms. Mine are bilateral TOS, right is (i think) due to serratus issue. Left is due to injured longus colli which is not stabilizing my cervical spine. I have constant pain in my right shoulder/neck area, I think overstressed levator and upper trap and also a supraspinatus injury probably.
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Old 07-28-2015, 01:44 AM #7
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Hi Booklover, I seem to have injured my LTN in a fall from a bike several years back and have been working on reactivating my right serratus. I can feel a muscle contracting beneath my armpit even if i move my right arm up. Does that mean I can rehab the muscle? Any idea of teh time I'd take and the specific exercises and other muscles to focus on along with it?Also what wre your symptoms. Mine are bilateral TOS, right is (i think) due to serratus issue. Left is due to injured longus colli which is not stabilizing my cervical spine. I have constant pain in my right shoulder/neck area, I think overstressed levator and upper trap and also a supraspinatus injury probably.
Akash- This is a tough question! I wish I had a time line or a definite idea of an end point for you, I'm still hacking out this jungle myself.

My PT seems to be of the mind that the constant cramping sort of thing, while crappy, Can have its benefits in that your muscle isn't atrophying even though it's hard to control. There is still Some signal getting through to it. I guess it really depends on how damaged you LTN is, and how long ago the injury was. There are surgeries where docs transfer the thoracodorsal nerve to the serratus anterior to make it work again, but that's usually done when it's palsied.
When that muscles Does start freaking out, especially if you had a traumatic injury associated with it, it throws your body in to this weird hell cycle. LTN injury causes scapular winging and trouble holding the shoulder up> shoulder rolls forward compressing brachial plexus and straining compensating neck muscles> narrowed brachial plexus/over worked neck compresses and irritates the nerves that hold your shoulder up. Rinse, repeat, lay on the floor in pain.
With your other familiar symptoms though, it's probably a good idea to pursue docs or PT focusing on a brachial plexus injury or compression, even an atypical TOS presentation (I'm going through this battle right now). The LTN goes through the scalenus medius and hypertrophy or spasming really irritates it. Especially if your neck stabilizers are injured, making it very likely you've developed a kyphotic posture or are just over working your scalenes to make up for it. A lot of the TOS treatment deal with mainly the Anterior scalene which, in my experience, does jack all for helping the LTN symptoms.
My serratus freaks out whenever I try and lift my arm, and my PT helped confirm that this was from my initial guarding behavior of the injured arm and without the resistence and pull of my serratus anterior my levator scapulae and neck muscles were doing all the lifting for me. They're just not built for that kinda work!

Def go see somebody, someone who specializes in posture physical therapy if possible too. Most PT's will put you through the paces of strengthening your rhomboids and upper traps to make up for your wacky serratus anterior, which may work for you if you haven't tried it. Lots of core strengthening and mid back exercises as well.
All the winged scapula specific work in my case wound up only further irritating the neck and shoulder support muscles causing a lot more dysfunction, but the core work did make it so I have Amazing abs for a shut in, Hahaha. Still, everyone on here has such a unique injury and background, just cause something fails for one person doesn't mean it won't be the key to relief for another. Try to keep zen about it though and be pushy with your PT if it's not working.
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Old 07-21-2015, 01:22 AM #8
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Im responding to everyone by pressing reply on each post but it isn't posting? Am I doing this wrong?
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Old 07-21-2015, 01:40 AM #9
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Welcome to NeuroTalk!

You're doing just fine!
Sometimes there can be a short delay.
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Old 07-21-2015, 09:40 AM #10
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Welcome to NeuroTalk!

You're doing just fine!
Sometimes there can be a short delay.
Okay good!!
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