Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 07-27-2015, 09:55 PM #1
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Default There is talk of a reop

My neurologist wants me to see another tos surgeon. Obviously I'm still having big problems with pain and PT is not helping.

Has anyone had a successful reop? My scalenes were not removed, only a portion of the first rib.
Nellyzen is offline   Reply With QuoteReply With Quote

advertisement
Old 07-27-2015, 10:20 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Default

How long ago was your surgery?
Has any new imaging or testing been done yet?

The problem could be from the stump rubbing or still causing compression, internal scarring, scalenes, or pec minor. possible some myofascial sx too.

I know in the past a few did have to go back for total rib removal, cleaning up of scar tissue, and /or pec minor or more scalenes..
thorough testing & expert TOS doc will be best way to go...to find the best treatments.

but just guessing - that partial rib might be the troublemaker...
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 07-27-2015, 11:13 PM #3
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Default

Both surgeries were almost a year ago. I also have myofascial pain syndrome and shoulder impingement syndrome.
Nellyzen is offline   Reply With QuoteReply With Quote
Old 07-28-2015, 07:46 AM #4
veetos veetos is offline
Junior Member
 
Join Date: Aug 2014
Location: Los Angeles
Posts: 13
8 yr Member
veetos veetos is offline
Junior Member
 
Join Date: Aug 2014
Location: Los Angeles
Posts: 13
8 yr Member
Default

Quote:
Originally Posted by Nellyzen View Post
My neurologist wants me to see another tos surgeon. Obviously I'm still having big problems with pain and PT is not helping.

Has anyone had a successful reop? My scalenes were not removed, only a portion of the first rib.
I think I've read some of you posts. You have VTOS right? If so, partial rib resection woulnd't completely help you. It helps more for ATOS and NTOS because the neurovascular bundle is more posterior. The vein are more in the front, you would need a complete removal of the first rib from the sternal notch. Do a google image search for reference.
veetos is offline   Reply With QuoteReply With Quote
Old 07-28-2015, 12:49 PM #5
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Default

I have Vtos, Atos and Ntos probably. Who knows anymore?
Nellyzen is offline   Reply With QuoteReply With Quote
Old 08-04-2015, 04:06 AM #6
SnappleofDiscord's Avatar
SnappleofDiscord SnappleofDiscord is offline
Junior Member
 
Join Date: Jan 2015
Location: On the Road
Posts: 27
8 yr Member
SnappleofDiscord SnappleofDiscord is offline
Junior Member
SnappleofDiscord's Avatar
 
Join Date: Jan 2015
Location: On the Road
Posts: 27
8 yr Member
Thumbs Up

Heya Nellyzen-
Really sorry to hear this, such a let down
I'm currently researching options between partial and full rib resections and there seems to be some research on success of re-ops after partial rib resections. What Veetos said is spot on!!
A number of people on here have mentioned Dr Donahue for their re-ops, and the is emerging researching on the need for full rib resection for complete recovery and avoiding developing the issue again.
Can't seem to find the article ATM, but drs Lum, Reifsnyder, and Freischlag and Johns Hopkins did a few papers on it, and reop can have a good chance as long as the issue has been identified.

Tried to catch up on some of your previous posts to familiarize myself with your case. Who was your surgeon?
SnappleofDiscord is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
veetos (08-05-2015)
Old 08-04-2015, 11:34 AM #7
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Default

My surgeon was Farid Gharagozloo. I am having an MRA on the 14th so we will know more about what is going on internally after that.
Nellyzen is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Please, somebody -- talk Wren Survivors of Suicide 21 02-26-2014 11:05 AM
How do I talk to Dr? carly214 Traumatic Brain Injury and Post Concussion Syndrome 3 07-06-2012 10:23 AM
All this talk about the flu... legzzalot The Stumble Inn 2 11-06-2009 08:20 PM
Wonder 123: Come talk with me! <3 megveg Survivors of Suicide 25 07-30-2008 03:36 PM


All times are GMT -5. The time now is 07:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.