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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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11-20-2015, 04:51 AM | #1 | ||
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Junior Member
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Friends,
I am suffering from bi -lateral ntos .I left my IT job and now doing masters to take a teaching job just because of tos issues. I would like to understand in general how many of us on this group are still working full time? My symptoms are slightely increased due to attending classes and now have a swelling/lump on left supraclavicular region.One spine doctor said its trapezius muscle swelling but I think its scelene muscle and is due to my cervicothoracic joint inflammation. I am quite new into this and really afraid by considering my efforts to do masters shouldn't go waste if I will not be able to work in future. Please give some ideas. Ramdas |
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11-22-2015, 12:22 PM | #2 | |||
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I had TOS surgery in 1991 and have been on disability ever since.
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Obsessed with reclaiming mobility, and functional, pain-free movement. Check out my YouTube channels . My Easy Cooking Channel . |
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"Thanks for this!" says: | ramdas (11-23-2015) |
11-22-2015, 09:44 PM | #3 | ||
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I was able to work with TOS for 11 years, then it got worse, my arteries became compressed, I had to have surgeries and haven't worked in more than a year. I'm getting disability...it went back starting the day I stopped going to work.
I had a neuropsych eval that documented the amount of pain that I am in very well which helped my disability case. If I had stopped working when I was 23 and got TOS, I would only have received SSI, at $733 a month for disability. Because I worked I get SSDI, which is much better for many reasons and is based off my earnings, if you have a spouse their income doesn't count against your disability payment when you get SSDI rather than SSI, etc... If you get student loans and later get disabled and are disabled for more than 5 years your student loans can be forgiven if you have a doctor fill out a form. Generally, I feel glad that I worked in spite of the pain for all those years...I'm a few classes off from my master's and feel like "what's the point?" though, but maybe next year....unfortunately, my TOS has gotten worse in the past couple of weeks with the weather getting cold again. |
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"Thanks for this!" says: | ramdas (11-23-2015) |
11-23-2015, 08:44 AM | #4 | ||
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Junior Member
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Quote:
My symptoms are minimum but aggregate with computer usage and gets lot of chest, supraclavicular pain. Do you mean to say you worked 11 yrs on computer even after TOS? This motivates me to join the work again.We in India don't have any form of disability benefit , we only pay taxes. Thanks to my spouse since she works which helped to keep money flow for medicals and monthly expenses.But I am just 32 yrs and cannot stay away from work for future expenses and have a kid too.Its horrible feeling when I think of dark future . |
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11-23-2015, 10:18 PM | #5 | ||
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Quote:
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"Thanks for this!" says: | ramdas (11-24-2015), ShaggyChic_1201 (11-30-2015) |
11-24-2015, 05:55 AM | #6 | ||
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Junior Member
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What kind of tos you have ? Any troma history or only computer work? So whats your advise on my masters ? Shall I continue it by taking precautions because I definitely don't have that pain level now since am not touching computer now. |
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11-30-2015, 11:19 PM | #7 | |||
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Junior Member
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My right arm is purely decorative - I just use it to fill out my clothing. Now that my symptoms are becoming bilateral, I am more nervous though. It was easier when I had a good arm to stand on (HA!), but if the left one goes out, I've got nothing. If given the choice of dealing with not working or losing use of my one good arm, I'll learn to like daytime TV As for whether to continue schooling, I'd say yes - though you might need to lengthen the time it takes you. I got masters in 3 years instead of 2 so I didn't have to do as much course work. What I've learned is essential for my health is good posture and proper ergo. The posture has to come from proper muscle balancing, not just forcing your shoulders back and head this way or that. Get to know a good physio and can teach you the right exercises. Stay with him/her for a long enough time to know if what was prescribed is working and then you can continue on your own, just getting a check in as needed. Also, buy the best ergo stuff, even if you have to skimp elsewhere. Good luck. |
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12-01-2015, 12:38 AM | #8 | ||
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Junior Member
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I found a better option to work as corporate trainer for technology trainings to various corporate companies and this will have less computer work.I will go ahead and try this.Let see how this goes and again I will work only 8-10 days in a month and Will get enough money to make my expenses. |
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12-13-2015, 12:50 AM | #9 | ||
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I'm working full time. It's a huge struggle. I have a desk job, in something similar to IT. Right side ntos. I just had a rib removed on the 4th.
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12-20-2015, 07:35 AM | #10 | ||
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Junior Member
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How are you doing after rib removal surgery? Do you work on computer all day caused you ntos or something else ? Regards Ramdas |
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