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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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07-05-2007, 08:24 PM | #1 | ||
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In Remembrance
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I can't get into my PTP and then I got the same symptoms really bad, so I went back to the ER that is actually the one in my HMO. This hospital is so different from the good one I was rushed to earlier - it's dirty and they treat you like poop - they just rush everyone through.
When the doc saw my meds, he asked me if I had mental illness, bi-polar, etc. I had ALREADY explained to him that neuro TOS is a neurological condition (not an orthopedic condition) and that I had nerve damage. NONE of my drugs (because I have knoweldge of this subject) qualify as mental illness meds or bi-polar, so right off he seemed very judgmental and as if he'd written me off without even looking at my whole chart. Then he asked me if I had insurance because I'd been to the other ER. I explained to him I was doing what the other ER said, and that I'd actually called his ER that AM to make sure it was appropriate to come in. At the very end, I told him I was an attorney and pro tem judge prior to becoming ill, and that I didn't think we were communicating very well. His diagnosis was that my diabetes was again 500, and I needed a shot and some new meds, but that he wasn't going to do anything else but send me to my PTP tomorrow. I find it crazy that I've been going to this ER for three months with severe gall bladder pain, and it was the OTHER hospital that made the findings and said I need it out, and now he says "no." So I asked him what it was, and believe this - he says, "it's just a superfical pain, like probably some acid reflux." Since when is acid reflux a sharp knife pain in a specific spot right where the gall bladder is??? I think the docs RUN SCARED FROM TOSERS and don't want to "touch" us. THANK YOU ALL FOR YOUR SUPPORT - it's so funny that I can get so many caring words here, when I get NONE at home. You guys mean the world to me! Thank you all for your kind posts. Gibbrn, I hope you beat the ins. baloney about the ridiculous restrictions. Don't give up. Get your doc to write a great response to their silly restrictions, if appropriate in your area to do so. And to those who ask about Lyrica, for me, I really didn't get that much relief from it, but I was following orders. I think I took it nine months, and about month three the pounds just came on almost daily!!! I gained the 50 or so lbs., like I said, and when I hit a certain weight, I just said, this has got to stop. I can't be this weight. And my face / head was so puffy and swollen! So I stopped it, and IMMED. began losing lbs. I did lose 60 lbs., more than I gained. Further, when I was on Lyrica I also totally lost my almost perfect eyesight. It got all fuzzy and blurry and I saw sort of shooting stars...I couldn't (and still can't) read magazines or the t.v. screen guide. Another side effect was that I craved sweets, but I really wasn't eating very much as I gained. The docs didn't believe me - but fiance knew I didn't eat, and he was kind of shocked as I told him my gains. I actually ate MORE when I was off of it, and yet lost lbs. each day. Each person has to make their decisions about these meds themselves. But I do have to say that these side effects we talk about with Lyrica and Topomax specifically, do seem to really be the same down the line, and not worth it. And I wonder, what are we experimenting with, putting these in our bodies? How much testing have these two drugs had??? I love you all for sticking up for me. It feels good. "F" that ER doc - where's our alligator??? |
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07-05-2007, 08:53 PM | #2 | ||
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It seems it's not just the tos we are all batteling, Physician's and insurance's,medications, and the list goes on. I sat here tonight thinking about how much money and how many jobs I have provided for all the people involved in my case alone. It's just simply awful. What a miserable time you had. Imagine through all that, for what. Seems no one want's to get involved when things get complicated. Take Care, God Bless
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07-06-2007, 12:57 AM | #3 | |||
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ok this is more truth to the incompetence of some doctors....but then we know all about that don't we!!!!!
I can't believe this stupidity! What the hell kind of doc would say oh some kind of superficial pain!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Lack of careing lack of knowlage lack of incentive!!!!! I hope you get the help you need....are you checking your blood sugar at home?? You may want to start doing this. I don't know if you are covered to get a blood sugar moniter or not...but it may be a good idea so that you know when you go in if this is an issue.....as well as the other stuff...but it seems to me you know more about yourself and your GI (gastro-intestinal) issues then that idiot doctor! I hope and pray that your PTP will be able to help you. May the Lord be with you and not another idiot!! thanks for the kind words of support!! I will stick it to those idiots of mine! It will just take time for my union to get them sorted. I have trouble with the docs in Ontario now as they are no longer treating me....so issues with that need an IME!!!!! but dont' have 1500.00 to toss away on it myself not to mention that it will be next year to get one! love and hugs, Victoria
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07-10-2007, 01:40 PM | #4 | |||
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Community Support Team
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sorry i missed this - was having puter issues..
eeessh- sounds like more of the fun run-around for you Tam I hope you can get off that nasty ride soon Good thoughts, prayers and hugs for you
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07-11-2007, 12:40 AM | #5 | ||
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Grand Magnate
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Tam I just saw this. Again, sheesh. You are in my prayers
Last edited by watsonsh; 07-11-2007 at 12:57 AM. |
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07-11-2007, 12:56 AM | #6 | |||
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Hi Tamara,
Sometimes, I wonder where they get these Dr's from or should I say where do these Dr's get there license from? I am sorry to hear that you had to deal with such horrendous care in that ER... I certainly hope that your PCP can get to the bottom of this issue and get the proper treatment started so that you can enjoy some of the beautiful summer weather... Many Hugs & Dawn
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07-11-2007, 07:40 AM | #7 | |||
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Oh poor Tam... this is so unfair. Wish I was closer so I could go to the hospital and (verbally)B*slap these guys for you.
Anne
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