Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-27-2016, 09:25 AM #2
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Littlepaw Littlepaw is offline
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Littlepaw Littlepaw is offline
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Dacello, hello and welcome to Neurotalk Support Groups.

I am so sorry you have had to find your way here but you will find it a good place for sharing and support. Nerve issues can be painful and limiting as many of of us know.

It sounds like you have already had a bit of workup and that is good. However, nerve issues don't always show up on imaging or even necessarily in conduction testing. Peripheral nerve problems are kind of an "orphan specialty" according to one of the big surgeons in this area, Dr. Susan Mackinnon.

For TOS and even the cubital nerve issue which may have an entrapment or injury that can't be seen, it may be necessary to travel to get the care you need. Hopefully you can find what you need closer to home but if you don't feel you are getting anywhere go ahead and start inquiries so you have a plan. You can always cancel appointments or change the plan later if you improve. Often with nerve problems appointments can be gotten quickly when the need is urgent. Be sure to tell staff about pain and any motor problems or atrophy if you have them. There is an exceptional neurosurgery program at UC San Diego that treats both peripheral nerve and TOS if you don't respond to therapy. They are on the cutting edge for a lot of research and treatment. http://neurosurgery.ucsd.edu/conditions-treated/

I encourage you to hang in there and don't give up. Nerve injury issues take time but there is hope. There are some great specialists out there. If you don't find them at home and you can pull off the travel, by all means do so. Get the best healthcare you can find and get back to your music.

Please let us know what they find and how you're doing. You are not alone in this. I hope you find relief and answers soon,

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Last edited by Littlepaw; 02-27-2016 at 03:01 PM.
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