Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-22-2016, 04:34 PM #1
Sunflowerseed Sunflowerseed is offline
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Join Date: Mar 2016
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8 yr Member
Sunflowerseed Sunflowerseed is offline
Junior Member
 
Join Date: Mar 2016
Posts: 6
8 yr Member
Default Need guidance finding a doc in CA for Ulna nerves dislocations and TOS.

Hi Everyone,

I am a 35 year old female that began having swelling inside my elbows, with burning pain and decreasing use of my hands at the beginning of this year. While I have numbness in all my fingers I am also experiencing significant pain throughout my arms. I had no instance of injury or strain. I have been diagnosed with complete ulna nerve dislocation in one elbow and cubital tunnel compression in the other. I was only diagnosed after going to doctors over 3 months and finally a rheumatologist gave me an ultra sound.

An ultrasound technician mentioned he believed I also have some sort of TOS or vertebra compression. For 20 years I have numbness in my arms and legs all at the same time, I can barely sleep at night. I see stars all the time and get very low bp, I have not been able to take a standing shower since I was 19. If I raise my arms I immediately lose feeling. I experience weird random sharp electrical shooting pains in my arms and legs all day long. I get the sensation of water running down my legs. I get major muscle spasms and spent two weeks last month with my neck totally locked up and barely able to breath. I am experiencing constant pain in my chest and clavicles. In Dec before my elbows started bothering me I started experiencing excrutiating pain in my legs while walking, it continues for 2 days after even when still. It does. To feel like muscle pain but the kind of pain you experience when a limb is waking up, except it is evenly distributed through the my legs and is a pain I can't even believe I am able to survive it is so intense.

At this point I am not sure who to see. I live in Ventura County, but am willing to drive to LA to see a specialist. I have found lots of sports medicine surgeons for injuries but I feel I have much more going on than the elbow nerves and am hoping to find someone who can look at it as a group of things going on. All of it became very bad all of a sudden, with new things like the elbows. I am not sure if I see a neurologist or an orthopedic or what. I currently have no general doc.
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