Why does official tos info state that's it's easily curable?

hope-dk · 04-14-2016, 06:14 PM

I've just started having bilateral ntos symptoms 3 weeks ago. I've spent about 30 hours since, reading various info on the net about it. Most official sources state that ntos is curable / treatable with good results, for the majority of people, by using physical therapy.

Yet when you read in this forum, it seems that most people here with ntos have chronic horror cases that repond poorly to physical therapy.

Can anybody tell me why this is?

Jomar · 04-14-2016, 07:13 PM

A couple of reasons..
"official tos info" is not based on real world patient input..
Probably science & doctors input mostly...

Forums like NT are usually get those new to TOS, looking for info & some support and/or the more troublesome cases , or failed surgeries.

Very few that recover well post here.

jzp119 · 04-14-2016, 07:36 PM

Quote:

Originally Posted by hope-dk

I've just started having bilateral ntos symptoms 3 weeks ago. I've spent about 30 hours since, reading various info on the net about it. Most official sources state that ntos is curable / treatable with good results, for the majority of people, by using physical therapy.

Yet when you read in this forum, it seems that most people here with ntos have chronic horror cases that repond poorly to physical therapy.

Can anybody tell me why this is?

Exactly what Jomar said. When people feel better they dont spend time online checking forums.

Its treatable condition, but being that it is often neurogenic in nature, there are a multitude of downstream effects that cause people Problems in other areas. Also the surgery is quite invasive which contributes to the recovery being difficult. Its not a life sentence, it might feel like it, but everyone is capable of getting better with proper treatment.

Akash · 04-15-2016, 11:13 AM

If you have non traumatic TOS with only tingling and numbness in your fingers thats entirely different from how others have it. I suspect many Drs still stick to the above definition and are completely clueless. One Dr confidently informed me that TOS resolves within a couple of months and that my pain was in my mind. Gent lives next to my place and would not even inspect my shoulder or neck. His examination of my lower back was limited to taking an x-ray and telling me "See everything is all right".

jzp119 · 04-15-2016, 11:48 AM

Quote:

Originally Posted by Akash

If you have non traumatic TOS with only tingling and numbness in your fingers thats entirely different from how others have it. I suspect many Drs still stick to the above definition and are completely clueless. One Dr confidently informed me that TOS resolves within a couple of months and that my pain was in my mind. Gent lives next to my place and would not even inspect my shoulder or neck. His examination of my lower back was limited to taking an x-ray and telling me "See everything is all right".

Good friend of mine is in med school and he showed me the little section they have on vascular disorders and it said that the only way to develop TOS is by having extra cervical ribs. The truth is that 99% of the time this condition is not life threatening, just painful and annoying, so doctors honestly do not know anything about it. If it became a huge epidemic effecting millions of people then more clinicians would be educated on it I assume.

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
in each state of the USA there is an info line -please try it...	lou_lou	Parkinson's Disease	2	05-26-2010 01:21 PM
I found out we can get the $300 from the state!! heres the info!	RSD_Angel	Reflex Sympathetic Dystrophy (RSD and CRPS)	3	04-03-2008 09:34 AM

Site Navigation

NeuroTalk Online Support Groups

Why does official tos info state that's it's easily curable?

NeuroTalk Forums