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-   -   Thyroid with TOS (https://www.neurotalk.org/thoracic-outlet-syndrome/23770-thyroid-tos.html)

johannakat 07-16-2007 09:16 PM

my doc is useless...barely rememebred to tell me i had the antibodies at all, said the numbers were high, but didn't point to them being super unusual. He said i fell into the "moderately" hypothyroid category. with TSH over 5=mild, tsh over 10=moderate and tsh over 20=severe.

watsonsh 07-18-2007 09:18 PM

Well,

It seems that I am going to be a aguinea pig. My thryoid continues to be inflamme and as one doc said today...its inflamming the structures all around it including the nerves.

So that thryoid is coming out on July 31st. Say goodbye. :eek:

watsonsh 07-19-2007 09:18 PM

Well before we make the trip down surgery road how bout some steroids first :mad: :eek:

Yes please one medrol dose pack for me to bring down all the inflammation in the ole thryoid. Cheers

johannakat 07-19-2007 09:52 PM

so, how long do you have to wait after that to get surgery?

watsonsh 07-20-2007 01:24 AM

Still on for 7/31 at this point. Only a 5 day steroid pak

HopeLivesHere 07-20-2007 01:49 AM

It's always one more thing
 
Hi J-Kat,
I understand what you are saying. Isn't one thing enough. Wasn't having the 3 babies enough? slip in TOS, maybe fibro? and then low thyroid?
The diagnoses keep adding up and we're exhausted.
Yes, my doc and I monitor my thyroid levels yearly. I have a rather new age doctor who is into natural medications. I take Armour thyroid. Something about it having T3 and T4 ... it works well for me and my daughter. We both had low basal morming temps. That is a sign of hypothyroidsm. I am doing very well with the pump. I can't imagine live without it. I got a little discouraged that I wasn't recovering as I should.
I called Medtronics and they said 8 weeks is the norm.

About the anesthesia and surgery causing heart problems/arrhythmia.....did your recent surgery cause problems. Mine didn't. I've seen lots of hypothyroid patients have surgery. When the thryoid was under control however.
When you change doctors and they get this case solved, you should feel much better. Lets hope that is it
Hope

olecyn 07-20-2007 10:53 AM

Shell Belle & JoH
 
Thyroid removal gal pals?
Holy Moly!!
My thyroid is under control with synthroid.
What does doc J say about this?
U can PM me with that info.

Don't you~all think that when we are in so much pain and stress our body's r so out of wack that it affects everything since every single vessel, muscle and artery is connected? O then there is connective tissues. Lovely.

Steroids...
All I can say is that when I had chemo I actually looked forward to it.
About 10 hours of NO pain the day of.
Steroids and Benedryl in my IV's gave me the ability to actually go to the grocery store and cook a meal which is normally non existant. And how I LOVE to cook and create.

Dr. Agnew gives me steroid and anthesia injections in the Pec minor...
It helps for at least 2-3 weeks.

10 minute Compooper timer just went off
Off to my usual morning of Cyndy time.
Cardio, nerve glides, breathing, Edgelow, posture modalities, air pillow and my best friend, the floor.
XXOO

johannakat 07-20-2007 11:52 PM

when i showed dr J my recent blood work he said "hmmm, looks like you've got a little problem with your thyroid!"

followed by, "yes, the party line would be that you should not have surgery while your thyroid is misbehaving" [i think thyroid removel doesn't count, here :p !!!]

follwed by a very accurate "well, this is really good news [that my thyroid is so off, but easily fixed], with a little bad news[that i had to put off rib resection surgery]"

[sorry, being very literal here... :)]

and yes- my life has been overwhelmed by the tiredness- It is so difficult to know when it is the pain or something else that is making us feel lousy. the lack of energy just covers EVERYTHING like a big blanket...but instead of being warm and cozy it is just heavy and hard to move around under :(

johannakat 07-20-2007 11:56 PM

*shell*
 
in all seriousness- i think shelley's has caused just a whole BOATLOAD of trouble for her...and this is SO the right thing to do!!!!


:hug: :hug:

we're all rooting for you, bella :)

johannakat 07-28-2007 02:01 AM

meds bumped up already ...
 
well, exisitng endo said today that my 16,000 antibody level was correct and only means that someday my thyroid won't work at all.

He also agreed to fast track the titration of my meds and took levels today (i'll get the results next week) and bumped up the Levothyroxin from 75mcg to 112mcg. I am excited because the 75 has already made me feel so much better, and if there is more improvement to be had, well, that's just gravy. I just can't remember what it is like to have spare energy.:cool:

He also agreed to do ultrasound so we have a baseline picture of what's going on in there...even though he "treats hundred of people with hashimotos never having taken an ultrasound"

I just told him that I am no longer in the business of assuming things are AOK where there is a perfectly easy test to check it with. I mean really, its a 10 minute ultrasound. :eek:


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