So, how many of us have thyroid problems with TOS?

I was just dx'ed hypothyroid yesterday.....and the little reading I have done mentions that if you have something like carpal tunnel it will get worse when your thyroid misbehaves. SO, since neurological TOS is more like Super carpal tunnel, i can only imagine.

I always thought being tired was a function of chronic pain....and I am really hoping adjusting and adding some thyroid support will help me get over the hump! I just started taking levothyroxin today...so we'll see what happens.

I don't know yet if I have the hashimotos antibodies, (doc didn't talk long on the phone) but I'll get my own copies of the blood tests on monday.

I know there are a few out there, and at least in one case (you know who you are!!) it is quite a big deal.

Just wondering if there are others?

Johanna

I've read of thyroid problems tied in with RSI also.

Not necessarily that either one is caused by the other - but that pain/sx can be worse if the thyroid is out of balance.

I will add that I wouldn't be surprised if extreme spasms in the neck and throat muscles could affect the thyroid somehow. Or even they may affect the flow of blood/nutrients to it.

I too started having hypothroidism AFTER being diagnosed with TOS. I take only a very small amount of levithyroxine but I must say it was the very first and only little pill that made such a difference in the fatigue I felt.

Hi there i have hypothyroidism i take synthroid .150 i was told i had it about 6 yrs ago. My doctor was only doing once a year blood work but now she checks my liver every 6 months she checks my thyroid at the same time. I never thought about it affecting my tos. Oh and i am happy to say that my liver is fine to but she keeps a close eye on since i have started all the pain pills i am on. But now that i have read your threads i do belive that the second year of pain she did have to put my pill up from 125 to 150 it only seem to make me feel good for about a week. Then i felt the same as before so i guess it could affect how one feels having tos and thyroid at the same time. I will have to ask my doc when i see her next month. One thing first do any of yous have trouble with your memory?

I was diagnosed with hypothyroidsm quite a few years ago, but I've been dealing with tos and rsd for almost 6 years.
I will say that when I started on thyroid, I woke up, cognition improved, and I had a clearer head. This all went away when the pain continued to get worse. Now I am worse than ever, but I blame that on Chronic Pain.

YES!!!!! Really bad for awhile during the beginning & worst of my symptoms and my focus/concentration was horrible too.

who can focus on anything when you are hurting like this? ack.

Sandy- I am keeping my fingers crossed for the same results.

Mucker- Good to keep an eye on that liver. !!

Hope- do you still have your thyropid monitored with all else you have going on? Seems like it would be hard to mnitor just by symptoms alone, but that letting it get wacky again can't possibly be helpful. Are you still feeling better BTW?


My doc put me on 75mcg of levothyroxin. I started off yesterday feeling really nauseous after i took it, but then when i was able to get the pain meds down after i really perked up. I sure have my fingers crossed.

My hunch is that this has been going on for several years, i noticed my morning temps were low when I was trying to convieve my middle baby (late '02). I had thought about having it checked at the time, but didn't. (i thought maybe it was just my basal thermometer). That's it for me, any time i have a hunch i am getting myself in to have it checked..from now on!!!!

I really believe everyone comes with conditions that are sub par, but the more that is thrown at us, the less we can compensate for. I frankly haven't felt awake since I had baby #2. But everyone tells you (and I really expected) that it is normal baby stuff.....

When baby #3 came and dd #1 got dx'ed ADD, and baby 3 turned up asthma and i got TOS pretty much all at once, well, i have sure been struggling since then. Just sooooo tired all the time. My husband says i am lazy and/or need to get an exercise some, but I know it has been more than that. I mean, i know a little cardio each day will make me feel better, but it isn't enough to make me feel "good" and i can't even drag myself to the gym most days anymore. I have also attributed my inability to focus on things to an ADD dx I had 1.5 year ago, but maybe it is just the thyroid and/or chronic pain doing it's thing.

It is SO VERY DIFFICULT to understand what "normal" is supposed to feel like because we just can't be in someone else's skin to experience it.

For me, it just had to be quite unbearable before i have really bothered to get things checked out. I knew while is was preggers with 2 and 3 that i felt really crappy all the time, and I used to have these crazy blood sugar drops and could not get moving. here were plenty of pregnant folks around me that didn't feel half as bad as i did....wish i'd have had it checked out then.

ah well live and learn.

I'll keep my fingers crossed that this really helps


Done with my mini rant now.

Johanna

Hi J-Kat,
I understand what you are saying. Isn't one thing enough. Wasn't having the 3 babies enough? slip in TOS, maybe fibro? and then low thyroid?
The diagnoses keep adding up and we're exhausted.
Yes, my doc and I monitor my thyroid levels yearly. I have a rather new age doctor who is into natural medications. I take Armour thyroid. Something about it having T3 and T4 ... it works well for me and my daughter. We both had low basal morming temps. That is a sign of hypothyroidsm. I am doing very well with the pump. I can't imagine live without it. I got a little discouraged that I wasn't recovering as I should.
I called Medtronics and they said 8 weeks is the norm.

About the anesthesia and surgery causing heart problems/arrhythmia.....did your recent surgery cause problems. Mine didn't. I've seen lots of hypothyroid patients have surgery. When the thryoid was under control however.
When you change doctors and they get this case solved, you should feel much better. Lets hope that is it
Hope

Thyroid removal gal pals?
Holy Moly!!
My thyroid is under control with synthroid.
What does doc J say about this?
U can PM me with that info.

Don't you~all think that when we are in so much pain and stress our body's r so out of wack that it affects everything since every single vessel, muscle and artery is connected? O then there is connective tissues. Lovely.

Steroids...
All I can say is that when I had chemo I actually looked forward to it.
About 10 hours of NO pain the day of.
Steroids and Benedryl in my IV's gave me the ability to actually go to the grocery store and cook a meal which is normally non existant. And how I LOVE to cook and create.

Dr. Agnew gives me steroid and anthesia injections in the Pec minor...
It helps for at least 2-3 weeks.

10 minute Compooper timer just went off
Off to my usual morning of Cyndy time.
Cardio, nerve glides, breathing, Edgelow, posture modalities, air pillow and my best friend, the floor.
XXOO

when i showed dr J my recent blood work he said "hmmm, looks like you've got a little problem with your thyroid!"

followed by, "yes, the party line would be that you should not have surgery while your thyroid is misbehaving" [i think thyroid removel doesn't count, here !!!]

follwed by a very accurate "well, this is really good news [that my thyroid is so off, but easily fixed], with a little bad news[that i had to put off rib resection surgery]"

[sorry, being very literal here... ]

and yes- my life has been overwhelmed by the tiredness- It is so difficult to know when it is the pain or something else that is making us feel lousy. the lack of energy just covers EVERYTHING like a big blanket...but instead of being warm and cozy it is just heavy and hard to move around under