So, how many of us have thyroid problems with TOS?

I was just dx'ed hypothyroid yesterday.....and the little reading I have done mentions that if you have something like carpal tunnel it will get worse when your thyroid misbehaves. SO, since neurological TOS is more like Super carpal tunnel, i can only imagine.

I always thought being tired was a function of chronic pain....and I am really hoping adjusting and adding some thyroid support will help me get over the hump! I just started taking levothyroxin today...so we'll see what happens.

I don't know yet if I have the hashimotos antibodies, (doc didn't talk long on the phone) but I'll get my own copies of the blood tests on monday.

I know there are a few out there, and at least in one case (you know who you are!!) it is quite a big deal.

Just wondering if there are others?

Johanna

I've read of thyroid problems tied in with RSI also.

Not necessarily that either one is caused by the other - but that pain/sx can be worse if the thyroid is out of balance.

I will add that I wouldn't be surprised if extreme spasms in the neck and throat muscles could affect the thyroid somehow. Or even they may affect the flow of blood/nutrients to it.

I too started having hypothroidism AFTER being diagnosed with TOS. I take only a very small amount of levithyroxine but I must say it was the very first and only little pill that made such a difference in the fatigue I felt.

Hi there i have hypothyroidism i take synthroid .150 i was told i had it about 6 yrs ago. My doctor was only doing once a year blood work but now she checks my liver every 6 months she checks my thyroid at the same time. I never thought about it affecting my tos. Oh and i am happy to say that my liver is fine to but she keeps a close eye on since i have started all the pain pills i am on. But now that i have read your threads i do belive that the second year of pain she did have to put my pill up from 125 to 150 it only seem to make me feel good for about a week. Then i felt the same as before so i guess it could affect how one feels having tos and thyroid at the same time. I will have to ask my doc when i see her next month. One thing first do any of yous have trouble with your memory?

I was diagnosed with hypothyroidsm quite a few years ago, but I've been dealing with tos and rsd for almost 6 years.
I will say that when I started on thyroid, I woke up, cognition improved, and I had a clearer head. This all went away when the pain continued to get worse. Now I am worse than ever, but I blame that on Chronic Pain.

YES!!!!! Really bad for awhile during the beginning & worst of my symptoms and my focus/concentration was horrible too.

who can focus on anything when you are hurting like this? ack.

Sandy- I am keeping my fingers crossed for the same results.

Mucker- Good to keep an eye on that liver. !!

Hope- do you still have your thyropid monitored with all else you have going on? Seems like it would be hard to mnitor just by symptoms alone, but that letting it get wacky again can't possibly be helpful. Are you still feeling better BTW?


My doc put me on 75mcg of levothyroxin. I started off yesterday feeling really nauseous after i took it, but then when i was able to get the pain meds down after i really perked up. I sure have my fingers crossed.

My hunch is that this has been going on for several years, i noticed my morning temps were low when I was trying to convieve my middle baby (late '02). I had thought about having it checked at the time, but didn't. (i thought maybe it was just my basal thermometer). That's it for me, any time i have a hunch i am getting myself in to have it checked..from now on!!!!

I really believe everyone comes with conditions that are sub par, but the more that is thrown at us, the less we can compensate for. I frankly haven't felt awake since I had baby #2. But everyone tells you (and I really expected) that it is normal baby stuff.....

When baby #3 came and dd #1 got dx'ed ADD, and baby 3 turned up asthma and i got TOS pretty much all at once, well, i have sure been struggling since then. Just sooooo tired all the time. My husband says i am lazy and/or need to get an exercise some, but I know it has been more than that. I mean, i know a little cardio each day will make me feel better, but it isn't enough to make me feel "good" and i can't even drag myself to the gym most days anymore. I have also attributed my inability to focus on things to an ADD dx I had 1.5 year ago, but maybe it is just the thyroid and/or chronic pain doing it's thing.

It is SO VERY DIFFICULT to understand what "normal" is supposed to feel like because we just can't be in someone else's skin to experience it.

For me, it just had to be quite unbearable before i have really bothered to get things checked out. I knew while is was preggers with 2 and 3 that i felt really crappy all the time, and I used to have these crazy blood sugar drops and could not get moving. here were plenty of pregnant folks around me that didn't feel half as bad as i did....wish i'd have had it checked out then.

ah well live and learn.

I'll keep my fingers crossed that this really helps


Done with my mini rant now.

Johanna

PS, you know that long post that Tam has saying you should go get all the accessory stuff checked out before you have TOS surgery?

it's a really good one.

Hey Tam- is thyroid on that list? I can't remember. I know I went and did the rheumy studies, but my doc didn't do thyroid at the time.

I think she has full blood work up listed on it.


My test # came in at normal on 5/05

Free T4 =1.25 normal range is {0.8 -2.0}
TSH-HS =1.35 and normal range is {0.4-4.6} {0.5-8.9}

anyone want to add your numbers ??
we can do an informal comparison.

When I had my 3DMRA with doc Collins it picked up nodules on my thyroid. It took about 18 months before I could get a doc to get interested in working it up Finally when I saw Dr Ellis he said I should really get it checked out.

First came a thyroid biopsy which showed a large thyroid nodule with a couple of small nodules. Then a thyroid biopsy which showed the lower half of my thyroid wasn't working.(thankfully, no thyroid cancer-by this time I was scared)

Now I take Unithroid 0.075 a day. I can't say I noticed a big difference, but I do feel a little better now that I'm sleeping with the bi-pap machine(for sleep apnea)

Did you have a 3DMRA? If so did it show anything unusual on your thyroid?
Have you had an ultrasound of your thyroid?
I am just wondering if they do diagnostic tests on the thyroid when they notice blood levels are low?