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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

Canadian TOS sufferers?

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Old 12-05-2016, 09:17 AM   #1
Jeneu
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Default Canadian TOS sufferers?

Hello, I continue to suffer from this nasty condition despite having decompression surgery 9 months ago. Just wondering if there's any fellow Canadians from Ontario in the same situation? Canadian TOS sufferers?

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Old 12-05-2016, 02:32 PM   #2
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Did you have NTOS/mostly nerve related ? Full rib removed?
If so the nerves can take a very long time to heal , and may even stay a chronic issue.

Internal scar tissue can happen also.
Any scalene or pec minor issues ? or Was any of that mentioned or address in surgery?

Any PT since the surgery?
Expert PT or other therapies might be helpful..
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Old 12-10-2016, 08:34 PM   #3
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I had a partial scalenectomy and total first rib resection. PT before and after surgery. I know the path report said that the scalene tissue was hypertrophied. There was no discussion about pec minor issues?? How would I know if there was any involvement with the pec minor muscles? I felt pretty good for 3-4 months after but all the symptoms have returned.
It has been pretty frustrating to say the least.

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Old 12-11-2016, 07:31 PM   #4
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Quote:
Originally Posted by Jeneu View Post
I had a partial scalenectomy and total first rib resection. PT before and after surgery. I know the path report said that the scalene tissue was hypertrophied. There was no discussion about pec minor issues?? How would I know if there was any involvement with the pec minor muscles? I felt pretty good for 3-4 months after but all the symptoms have returned.
It has been pretty frustrating to say the least.

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Any idea why no full scalenectomy?

Was it anterior or medial that they removed?
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Old 12-11-2016, 08:47 PM   #5
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It was a transaxillary approach so I'm assuming that the amount of accessible scalene tissue would be less? So I had a partial anterior and middle scalenectomy with a first rib resection.

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Old 12-19-2016, 01:21 AM   #6
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Quote:
Originally Posted by Jeneu View Post
It was a transaxillary approach so I'm assuming that the amount of accessible scalene tissue would be less? So I had a partial anterior and middle scalenectomy with a first rib resection.

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Yeah that assumption would probably be right. They likely just clear the area out as best they can and call it good.
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Old 12-19-2016, 07:07 AM   #7
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I see the surgeon for my one year f/u in February. I'm not sure what to say...Sadly I am a failure. Still have to see a Physiatrist in February as well who 'fingers crossed' will do Botox injections into my scalenes. I hope the Botox injections can give me some relief. I still haven't returned to my job as an ultrasound technologist and don't know if that will ever be a possibility as it just aggravates my condition. Do you also suffer from TOS?

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Old 12-19-2016, 07:16 AM   #8
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Anyone know of a Doctor in Ontario that does the Botox injections for TOS? I have been referred 3 times with no success in finding one!!!!!

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Old 03-15-2017, 06:04 AM   #9
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Anyone know of a Doctor in Ontario that does the Botox injections for TOS? I have been referred 3 times with no success in finding one!!!!!

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FYI..Dr. Tom Miller is a physiatrist in London and does do the injections for TOS if anyone is interested. He sees TOS patients on a very regular basis.

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