Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 08-21-2017, 05:03 PM #1
veetos veetos is offline
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veetos veetos is offline
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Thumbs up Choose your first surgeon carefully b/c redo or biterally/otherside is not possible

This has not been said on here. Many people who likes to go get second opinion are fine to do so but once you choose a surgeon that is it. You will be stuck. I am having this problem right now. Without going into too much details at the moments. I have seen Thompson St. Louis, UCLA Gelabert, AHN UVA, Azizzadeh Cedar Sinai, Lee Standford, Angle, Weaver NorCal, Matabifahd LA,

You guys have no idea what going on behind the scene. It's a small field. A little about myself. Never sued anyone. Had nerve damage after TOS surgery which required redo. Surgeon then told me to go the other side else where due to inconfident. So my quest began. Once every surgeon saw my scar and saw that I was already worked on in surgery by other surgeon. They knew that I was super knowledgeable thanks to this site. They all say no to me. They don't call me back for follow up, some won't give me appointment, and one doctor just straight up lied in the record saying I have no cervical rib. When another hospital found cervical rib and aneurysm. I wasted 3 years seeing all of these physicians just for them to tell me no. I keep getting worst. I went from my cardiologist saying why am I here I have perfect heart and clear me, to now she said there is regurgitation of flow directly blocked behind cervical rib and have skin "bed sore" lesion around the area.

I didn't know that was possible in the USA to no help a patient especially when I honor doctors and never sue. I think of my situation as it is what it is and I was graceful that I am lucky to be US citizen and have access to these doctors and have PPO and resources to pay my bill. I am emotional rekt and baffled by this.
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Old 08-28-2017, 07:07 AM #2
jobby99 jobby99 is offline
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jobby99 jobby99 is offline
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Default Second surgeries

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Originally Posted by veetos View Post
This has not been said on here. Many people who likes to go get second opinion are fine to do so but once you choose a surgeon that is it. You will be stuck. I am having this problem right now. Without going into too much details at the moments. I have seen Thompson St. Louis, UCLA Gelabert, AHN UVA, Azizzadeh Cedar Sinai, Lee Standford, Angle, Weaver NorCal, Matabifahd LA,

You guys have no idea what going on behind the scene. It's a small field. A little about myself. Never sued anyone. Had nerve damage after TOS surgery which required redo. Surgeon then told me to go the other side else where due to inconfident. So my quest began. Once every surgeon saw my scar and saw that I was already worked on in surgery by other surgeon. They knew that I was super knowledgeable thanks to this site. They all say no to me. They don't call me back for follow up, some won't give me appointment, and one doctor just straight up lied in the record saying I have no cervical rib. When another hospital found cervical rib and aneurysm. I wasted 3 years seeing all of these physicians just for them to tell me no. I keep getting worst. I went from my cardiologist saying why am I here I have perfect heart and clear me, to now she said there is regurgitation of flow directly blocked behind cervical rib and have skin "bed sore" lesion around the area.

I didn't know that was possible in the USA to no help a patient especially when I honor doctors and never sue. I think of my situation as it is what it is and I was graceful that I am lucky to be US citizen and have access to these doctors and have PPO and resources to pay my bill. I am emotional rekt and baffled by this.
It is quite common that surgeons don't want chronic pain patients. It is assumed that the 1st surgery was done correctly by most surgeons. They then think that you are chronic pain patient and cannot be helped by another surgery. Dr. Bernardo Martinez does "redo" surgeries in Toledo, OH. However, he will even stop treating you after a point. The Cleveland Clinic did surgery on my left side. I lost more function and had Dr. Bernardo Martinez redo the surgery. He said they left a ton of scar tissue behind when doing the surgery.
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Old 08-29-2017, 05:01 PM #3
veetos veetos is offline
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veetos veetos is offline
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Trig

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Originally Posted by jobby99 View Post
It is quite common that surgeons don't want chronic pain patients. It is assumed that the 1st surgery was done correctly by most surgeons. They then think that you are chronic pain patient and cannot be helped by another surgery. Dr. Bernardo Martinez does "redo" surgeries in Toledo, OH. However, he will even stop treating you after a point. The Cleveland Clinic did surgery on my left side. I lost more function and had Dr. Bernardo Martinez redo the surgery. He said they left a ton of scar tissue behind when doing the surgery.
For a Redo sure.
But on another side? Bilateral in touched side? Some of these surgeon gotta have confident in themselves. I had my right side done. All kind of vascular damage, nerve damage, swelling, flesh rot etc.
My left side is untouched and has change colors. No one has operated on it yet so it's not a redo.
I think it's more of a liability issue. They see that all these surgeons don't want to help you so if they help you. You can potentially sue other surgeons that didn't help for pain and suffering since the board thinks doctors are equal. So why one helped and one didn't. It's a bad karma to check people in same profession. That's why lawyers don't sue each other. Carpenter trade woods, and restaurant industries worker hook each other up. Same thing with doctor.
I truly think that. Say if Thompson won't work on you due to whatever reason (example not my case) THEN GOOD LUCK finding anyone else since the GOD FATHER HIMSELF choose not to operate.
Really, think about choosing your first surgeon properly or YOU WILL GET STUCK. That is all for now...
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Old 10-02-2017, 12:50 AM #4
day999 day999 is offline
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Quote:
Originally Posted by veetos View Post
This has not been said on here. Many people who likes to go get second opinion are fine to do so but once you choose a surgeon that is it. You will be stuck. I am having this problem right now. Without going into too much details at the moments. I have seen Thompson St. Louis, UCLA Gelabert, AHN UVA, Azizzadeh Cedar Sinai, Lee Standford, Angle, Weaver NorCal, Matabifahd LA,

You guys have no idea what going on behind the scene. It's a small field. A little about myself. Never sued anyone. Had nerve damage after TOS surgery which required redo. Surgeon then told me to go the other side else where due to inconfident. So my quest began. Once every surgeon saw my scar and saw that I was already worked on in surgery by other surgeon. They knew that I was super knowledgeable thanks to this site. They all say no to me. They don't call me back for follow up, some won't give me appointment, and one doctor just straight up lied in the record saying I have no cervical rib. When another hospital found cervical rib and aneurysm. I wasted 3 years seeing all of these physicians just for them to tell me no. I keep getting worst. I went from my cardiologist saying why am I here I have perfect heart and clear me, to now she said there is regurgitation of flow directly blocked behind cervical rib and have skin "bed sore" lesion around the area.

I didn't know that was possible in the USA to no help a patient especially when I honor doctors and never sue. I think of my situation as it is what it is and I was graceful that I am lucky to be US citizen and have access to these doctors and have PPO and resources to pay my bill. I am emotional rekt and baffled by this.


Hey man you saw a lot of the same people I have seen in California? Who do you think its the best/end up going with, thinking about going surgery route myself.
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