Go Back   NeuroTalk Support Groups > >

Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

Is there a consensus doctor for TOS surgery?

Reply
 
Thread Tools Display Modes
Old 10-02-2017, 12:48 AM   #1
day999
New Member
 
Join Date: Oct 2017
Posts: 2
Default Is there a consensus doctor for TOS surgery?

A little background:

Been going on 3 years trying different things edgelowe included, started off talking to Newkirk, he seemed very adamant on Avery, talked to Avery seemed knowledgeable but seen some stuff that's given me pause.

Down in L.A now, talked to Jordan, Ahn, mahtabifard and Gelabert soon, I feel like I'm running out of options. Main pain is in elbow cubital tunnel area but also other areas, MRI and venogram show compression at costoclaviular interval, not too much at pec minor or scalene. I think indicated surgery would be first rib resection.


Questions:

1. Is there a consensus doctor for TOS surgery?

2. I see Donahue and Thompson brought up a lot, are they that much better than the guy in L.A (surgery would be so much easier in L.A), plus I've heard negative things about each (along with a lot of positive).

3. Consensus surgeon in L.A/So-cal?

4. Trans axillary vs. supraclavicular?

Thanks for your thoughts on this~
day999 is offline   Reply With Quote
Old 10-02-2017, 10:45 AM   #2
Jo*mar
Co-Administrator
Community Support Team
 
Jo*mar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 24,942
My Mood: Is there a consensus doctor for TOS surgery?
Default

Do you know what may have caused your elbow pain?
repetitive/desk /computer/ weight lifting/ work?
previous whiplash /sports accident?

any PT /chiro /body work tried?
__________________
The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jo*mar is offline   Reply With Quote
Old 10-11-2017, 07:14 AM   #3
gigicnm
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 41
Default

I found Donohue thorough, compassionate and thoughtful. He has people that come from all over the world to see him, and his office is very used to helping facilitate treatment for people that travel to see him. That being said, if you have found a comparable surgeon on the west coast it seems like a good idea to have surgery close to where you live. Donohue often recommends a diagnostic Botox injection prior to scheduling surgery.

To answer your questions- no there is not a consensus doctor but there are a few who are considered top in the field. As far as surgical approach, that is the physician's preference.

You have seen a lot of doctor's. It would be helpful if you gave more information ie. what are these doctor's diagnosing you with and what is the plan of care each has formulated. Are they not giving you the diagnosis and treatment plan that you think you need or are they providing conflicting opinions?

Additionally, you are going to hear positive and negative opinion about any doctor. You really have to research their background (do they have multiple lawsuits, how many surgeries of the type you need do they perform each year, etc), disregard other people's personal opinions, and formulate your own. It's a gut thing. You either connect with a doctor, and enter a treatment plan thinking he is going to do the best he can for you, or you do not feel that connection/confidence with them and you move on.

If you can provide more information about your medical history and what opinions all of these doctor's have given you that will be helpful for myself and others to provide more specific information.

Gigi
gigicnm is offline   Reply With Quote
Reply

Tags
avery, consensus, l.a, surgery, tos

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Doctor is giving me the choice of surgery mommamomma Thoracic Outlet Syndrome 12 07-04-2015 01:47 PM
Big Consensus That Kids of Same-Sex Couples No Different Than Others NewsBot Health News Headlines 0 06-16-2015 05:40 AM
India doctor blames tainted drugs for deaths after sterilization surgery (Yahoo) NewsBot Health News Headlines 0 11-13-2014 02:30 AM
Patients protest Chinese doctor's risky surgery (AP) (Yahoo) NewsBot Health News Headlines 0 10-19-2010 11:40 AM
How student doctor got personal experience of brain surgery (Topix) NewsBot Health News Headlines 0 10-03-2010 06:20 AM


All times are GMT -5. The time now is 11:03 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2017 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy