Go Back   NeuroTalk Support Groups > >

Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

Sound Familiar?

Reply
 
Thread Tools Display Modes
Old 02-08-2018, 03:07 AM   #1
Neofate
Junior Member
 
Join Date: Nov 2011
Posts: 15
Default Sound Familiar?

Hey guys/ladies,..

I don't know what is wrong with me,.. but I'm going to find out eventually once a doctor takes things seriously.

Here's the deal:

For as long as I can remember (ie: 5-10 years) my shoulders get weak very quickly with my arms above my head.

Also VERY painful are the muscles between my thumb and index fingers and at the base (bottom) of my thumbs/hand. These muscles 'cramp' up and hurt intensely when I have to grip something for any extended period of time.

For example - I can hold an electric hedge trimmer (you know the plastic king) and 20 seconds into using it I have to stop and shake and rub these muscles. Not normal.

I just bring this symptom up to see if it's common with any of you or if that's just something else going on.

Otherwise much more recently I went to my doctor because I noticed the following:

In my right upper Chest and entire left arm (including hand) it's swollen, reddish, feels 'heavy' , has random pains , and is sensitive to pressure. IE: I can press or HIT my left upper chest or left arm and it hurts a bit due to the swelling.

Now also what really clued me into this was that I have "collateral" veins that have formed running from the upper left chest across shoulder into the bicep of left arm.

It looks nearly identical to this web photo (which is a guy with ToS.. hence why I'm here.)

It's just below the first paragraph: Thoracic Outlet Syndrome | Obgyn Key

The level of swelling, color extremity, etc is all about the same as that photo.

Now I initially thought this is probably a DVT. So went to my doctor showed him and he said he would order a Venous AND Arterial Doppler not because he thought it was anything but because he knew *I* would worry.

Well,.. I went to have those tests the next morning and no clot was found and nothing 'remarkable' was found. The test was normal/negative.

So doctor had nothing more to say about it.

But I'm unsure.


I figure, IF this is ToS.. it's venous ToS with some nerve involvement potentially?

For me the arm stays the same .. It doesn't swell up larger or go down to normal.. The only thing I can do is 'aggravate' it by doing some exercises with that arm/hand above my shoulder that sort of pumps the arm up. This causes it to feel heavier, have a redder color, veins stick out more, etc. Of course this is due to the blood building up in the area and 'slowly' being normalized back to the abnormal/normal of what it's been the last X months.



So essentially I'm wondering if any of you have had or HAVE the exact symptoms I've shown?
Neofate is offline   Reply With Quote
Old 02-08-2018, 11:15 AM   #2
Jo*mar
Co-Administrator
Community Support Team
 
Jo*mar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 25,542
My Mood: Sound Familiar?
Default

It will save you a lot of time and dr appts if you explore our useful sticky threads up above the TOS main page..so much info to learn..
Many of us had to self educate to be able to get the best treatment for our kind of TOS..
Also search out Drs & PTs that are advanced and more interested in the whole body.
We do have a Drs & PT thread in stickies too... you can see if any are local for you..

Do NOT go to /or do any PT with a one plan works for all...
Bad PT can make you worse ..

If you have head forward/rounded or hunch shoulders.. you can work on that to open up the chest space. https://www.neurotalk.org/members/100-albums422.html
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Community Guidelines linked @ at bottom of our pages.
Jo*mar is offline   Reply With Quote
Reply

Tags
arm, doctor, left, muscles, tos

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Does this sound familiar anyone? Clareb Myasthenia Gravis 9 06-05-2016 01:29 AM
Does any of this sound familiar? lynny31 New Member Introductions 4 11-12-2013 12:22 AM
Does any of this sound familiar? Houstonbabs Spinal Disorders & Back Pain 2 03-08-2013 07:57 AM
sound familiar to anyone? paula_w Parkinson's Disease 4 06-02-2009 09:00 AM
Does this sound familiar to anyone????? angelapravettoni New Member Introductions 3 10-30-2007 06:57 AM


All times are GMT -5. The time now is 08:12 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy