Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-20-2018, 11:07 PM #11
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Yes, he has different pre surgical sheets for each type of TOS and different statistics.

My surgery made me a lot worse than I was before the surgery. I might go get some second opinion about being reopened, but I'm scared that the outcome will be the same as the first. Gelabert is one of the best surgeons for TOS, and I honestly think he was trying to help me and did the surgery correctly. I think the statistics they give patients are not correct.

For example: When I filled out the questions for my post surgical results some of the questions were stupid, irreverent, and not direct. I remember one of the questions asked me "Do I have pain carrying a briefcase" who carries a briefcase anymore lol. At the time when I filled out the questioner I was also on opioids from post surgical treatment. This was the first time I've taken them so of course I should feel better if I'm drugged up. This is UCLA protocol one of the best hospitals in the world.

I still workout with light weights and avoid movements that bother me. I know my body better than anyone else, and my restrictions.

I'm always in pain even on my medication say out of 1-10 I'm a 5-8. Some days are better than others.

I work with a orthopedic surgeon 5 days a week and my entire family are MD's. I don't even think they understand the type of pain that I'm in and how it effects me. Maybe my grandfather does because he works in workmans comp.

At this point in my life I'm going to try and survive on medication, and wait it out. I was only 23 when I got injured, and there might be a cure for me in the future. The problem with being injured at such a young age is that you will be in pain a lot longer than someone who was injured later in there life. I was a Pre Dental Biology major in undergrad and I feel like we don't completely understand neuopathic pain yet and the problem might be on the cellular level instead of a simple compression of the nerves.
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Old 12-04-2018, 12:02 PM #12
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hey! I feel like you could really help me! I just posted a new thread relating to this and my boyfriend and I am so desperate for help! If you could check it I would be so greatful!
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Old 12-09-2018, 10:59 AM #13
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I understand your case is different because of the surgery, but if you can do get a full body eval by the PRI guys since you are in the US. Or somebody familiar with scoliosis. I suspect your dysfunction (as is that of most of us) is muscle imbalance patterning that makes you overuse certain muscles forcing the pec's to tighten up and clamp on the nerves.You need a postural evaluation and then a fix, opening up your posture.
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