Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-14-2019, 01:18 PM #1
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
Default Scalenectomy - I have questions

So first off I have TOS from repetitive strain caused by computer work - > now I have injured scalene muscles. thought about posting on the sub-forum but it was inactive.

I will get to the point. a scalene muscle is being cut off - > does it regrow? if so, how? does it grow injured, does it grow healthy? does it even grow back at all? I have hard time to imagine my life will be so great without major muscles supporting my neck. I want healthy muscles - is this the correct option? (I already tried PT)
DarKnight is offline   Reply With QuoteReply With Quote

advertisement
Old 04-14-2019, 11:18 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Default

I would not do surgery unless there was clear proof that it is the only option..
Use our search tool- for scalene , surgery and more-
https://www.neurotalk.org/search.php

And our sticky threads are full of info..
https://www.neurotalk.org/thoracic-o...les-polls.html
Trigger point information {TrPs} for short
DOCTORS & PTs List and saved PT info threads
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-15-2019, 03:54 AM #3
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
Default

Quote:
Originally Posted by Jo*mar View Post
I would not do surgery unless there was clear proof that it is the only option..
Use our search tool- for scalene , surgery and more-


And our sticky threads are full of info..
Thank you for the list of surgeons, has anyone heard of surgeon povilas pauliukas?
and I am still interested about the scalene regrowth thing.
cant find info on your search.
DarKnight is offline   Reply With QuoteReply With Quote
Old 04-15-2019, 12:18 PM #4
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Default

Scalene may reattach to other things in the area.. but not always.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-18-2019, 09:56 AM #5
Dontbeamelvin Dontbeamelvin is offline
Junior Member
 
Join Date: Feb 2019
Posts: 62
5 yr Member
Dontbeamelvin Dontbeamelvin is offline
Junior Member
 
Join Date: Feb 2019
Posts: 62
5 yr Member
Default

Quote:
Originally Posted by DarKnight View Post
Thank you for the list of surgeons, has anyone heard of surgeon povilas pauliukas?
and I am still interested about the scalene regrowth thing.
cant find info on your search.
How long did you try PT for? A lot of people go for a month, 8 weeks, don't see changes and quit.. believe it or not, it took a long time to get to where you are and it takes a long time, a lot of pain, and a lot of work to get better. Still, it may not work for everyone but I'd exhaust all possibilities before I had someone remove anything.
Dontbeamelvin is offline   Reply With QuoteReply With Quote
Old 04-18-2019, 11:31 AM #6
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Default

It took multiple sessions of PT & also expert chiro, plus a focus on doing home care follow up and not working for me to recover from chronic & acute RSI/TOS.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-18-2019, 01:58 PM #7
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
Default

Quote:
Originally Posted by Dontbeamelvin View Post
How long did you try PT for? A lot of people go for a month, 8 weeks, don't see changes and quit.. believe it or not, it took a long time to get to where you are and it takes a long time, a lot of pain, and a lot of work to get better. Still, it may not work for everyone but I'd exhaust all possibilities before I had someone remove anything.
4 months.

2 months of this:
**

then this for 2 months:
**
and something like this:
**

&&more exercises.

results: much better than it was, but:
anterior scalene still tight(the main cause)
CT angio still shows artery compression
still hand pain - brachial plexus compression
still cold hands,
still head problems.

Sure I can keep on trying - but at this point it will just be a miracle to solve it by my own. So yeah, looking for the best surgeon out there. removing this little muscle and then rebuilding it from scratch - is it such a bad idea? why?
DarKnight is offline   Reply With QuoteReply With Quote
Old 04-18-2019, 02:57 PM #8
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,723
15 yr Member
Default

Think more in years than months , even longer if you are still working or doing same activities that caused the problem..

Surgery- [ is it such a bad idea? why? ]
these issues have happened to past members..
A possibility of some internal scar tissue that can cause problems after the surgery.
Sometimes a reattachment happens ( in the wrong place) if scalene is only cut , or if only a small section is cut out..

May not solve the main problem..

I know there is a lot of info in the stickies, but they are very informative.. Don't try to absorb it all in a few readings..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-18-2019, 03:43 PM #9
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
DarKnight DarKnight is offline
Junior Member
 
Join Date: Apr 2019
Posts: 22
5 yr Member
Default

**note in edit line**

Second, good point you raised there -
but what makes you think that by doing exercises, my injured scalene tissue that is compressing my veins, arteries & nerves is going to simply heal itself perfectly? that doesn't make a lot of sense aswell since it's physical
structure has been deformed. my idea is this: finding a genius surgeon that will make sure there is no compression, then slowly rebuild the muscle's strength.

Last edited by Jomar; 04-18-2019 at 11:15 PM. Reason: Linking restricted for new members per guidelines @ bottom of pages.
DarKnight is offline   Reply With QuoteReply With Quote
Old 04-18-2019, 05:08 PM #10
Dontbeamelvin Dontbeamelvin is offline
Junior Member
 
Join Date: Feb 2019
Posts: 62
5 yr Member
Dontbeamelvin Dontbeamelvin is offline
Junior Member
 
Join Date: Feb 2019
Posts: 62
5 yr Member
Default

I tend to agree with Jo*Mar. Of course we don't know how much pain you are in etc. Each case is different. I probably wouldn't be letting someone go at me with a knife unless I had already had a clot or was at serious risk for one. Since I am not in this category as of now, I won't consider it.

I've also researched on these forums quite a bit and surgery can be very hit or miss even with the very best surgeon. The truth about TOS is there can be many points of compression, although you might feel pain in your scalenes or neck region, it doesn't mean cutting that out will entirely remove the problem. Doctors also can't just rebuild the scalene muscle. Once it's gone other muscles will certainly compensate and that could lead to other issues, or issues on the other side.

Many folks have had issues with the scar tissue after surgery as well.

I would look up TOStinman on YouTube. He's a member here but he is more active on YouTube. He had the scalenectomy done and his symptoms didn't really improve. Of course it could get better.. but in my research it seems like a coin flip.

Either way best of luck. I check up here time to time even though the forum is mostly dead it seems. I don't do Facebook so I don't really want to go on there for groups..
Dontbeamelvin is offline   Reply With QuoteReply With Quote
Reply

Tags
grow, healthy, injured, muscles, scalene


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Scalenectomy Fail sec161 Thoracic Outlet Syndrome 11 08-15-2015 11:51 PM
Scalenectomy per834 Thoracic Outlet Syndrome 20 03-10-2015 10:34 PM
1st Rib Resection and Scalenectomy Dr. Donahue Eight Thoracic Outlet Syndrome 6 09-17-2014 06:57 AM
Scalenectomy per834 Thoracic Outlet Syndrome 10 11-07-2013 02:33 PM
scalenectomy vs. first rib resectioning Bronwyn2 Thoracic Outlet Syndrome 7 02-21-2012 03:01 PM


All times are GMT -5. The time now is 12:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.