Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 06-18-2019, 12:55 PM #1
ZZ be ZZ be is offline
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Join Date: Jun 2019
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3 yr Member
ZZ be ZZ be is offline
Newly Joined
 
Join Date: Jun 2019
Posts: 1
3 yr Member
Default Looking for some hope and encouragement

Hello everyone
I am looking for some hope that it is possible to actually recover from this horrible disease, and any tips you can offer with regards to what else I can do to control the progression of this.
I am 28 years old and I've recently been diagnosed with thoracic outlet syndrome.
I've had the symptoms for about five years but have only recently been diagnosed. It currently seems to be progressing at a rather alarming rate for example every week there is a new symptom.

I have the following symptoms
uncontrollable shaking and twitching of muscles in both hands but mainly in left hand
I can see that the muscles at the base of my thumb on the left-hand side are wasting, although I am right-handed.
It's at the point where I'm finding it hard to for example lift the kettle
face pain and headaches
extreme neck tension and stiffness
I've been told I have a flat thoracic spine
my scapular are winging
my scalene are is rocksolid and have been for the last 12 years following an emotional trauma

My treatment plan as currently as follows

taking magnesium and vitamin B complex
taking vitamin D
using CBD drops as an anti-inflammatory
I will be starting a Pilates regimen next week under the care of my physiotherapist who has recommended getting a Pilates teacher to do the exercises with me
I have been doing Alexander technique but with limited success in applying in day-to-day life as it requires a complete change of breathing habits
I have an iron deficiency so I'm taking iron
I am meditating and trying mindfulness to reduce the general stress

I was training as a clinical psychologist and had to stop because this became so unbearable. Now instead I am a full-time private tutor which means I can control my schedule 2 to a degree however of course the positions involved in tutoring are hardly relaxing on the muscles. I'm going to be taking two weeks out of work to try and get a handle on things

I guess I just joined this forum for some encouragement that I can actually get better somehow and not be bankrupted by this horrible disease or permanently disabled which currently it feels like I'm on the path to.

Thank you so much

Z
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