Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 11-06-2019, 08:23 PM #1
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Default Travel to US for nTOS surgery

Hi All!

Has anyone travelled from overseas to have their surgery in the US? I'm an Aussie who has recently been diagnosed with bilat nTOS after many years of symptoms. Occurred due to MVA/whiplash 26y ago!

Unfortunately I have wasting on the left and had very severe symptoms prior to scalene botox recently. Considering surgery in the US due to high volume centres.

Interested in supraclavicular approach with scalenectomy, rib resection and neurolysis.

Any idea which surgeons treat international patients and what likely cost would be? Browsing online at websites of Dr's Thompson, Illig and Donahue at the moment.
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Old 11-07-2019, 01:34 AM #2
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Hi Ozdoc

Welcome to NeuroTalk .

I hope that other members will be able to offer you good suggestions.

All the best.
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Old 11-07-2019, 04:14 AM #3
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Quote:
Originally Posted by kiwi33 View Post
Hi Ozdoc

Welcome to NeuroTalk .

I hope that other members will be able to offer you good suggestions.

All the best.
Hi Kiwi,

Did you have surgery in Oz or NZ?
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Old 11-08-2019, 12:54 AM #4
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Sorry, I was wearing my "Community Welcome Team" hat; I have no personal experience of TOS.
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Old 11-12-2019, 06:19 AM #5
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Welcome... sorry to hear you’ve been dealing with this 26 plus years. I have been dealing with severe symptoms for at least 3, and symptoms for years prior that I never realized were part of this. I am 4 weeks post op scalenectomy woth neurolysis. I had my procedure done at the The Hospital
At the University of Pennsylvania with a renowned Neurosurgeon that has preformed this surgery for over 25 years. When researching and speaking with many doctors - this doctor has the best outcomes of most in northeastern Pennsylvania. (Which is including New York and Maryland) .
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Old 11-13-2019, 03:18 PM #6
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Quote:
Originally Posted by Tll160 View Post
Welcome... sorry to hear you’ve been dealing with this 26 plus years. I have been dealing with severe symptoms for at least 3, and symptoms for years prior that I never realized were part of this. I am 4 weeks post op scalenectomy woth neurolysis. I had my procedure done at the The Hospital
At the University of Pennsylvania with a renowned Neurosurgeon that has preformed this surgery for over 25 years. When researching and speaking with many doctors - this doctor has the best outcomes of most in northeastern Pennsylvania. (Which is including New York and Maryland) .
Hi, do you mind to share the doc's name? Did you do scalene injection first to diagnose? Can you share how your doc ruled out only scalenectomy and not rib resurrection was needed?
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