I was diagnosed with Thoracic Outlet Syndrome years ago by a Professor of Medicine at Bowman Gray School of Medicine during an exam for carpal tunnel. He moved both arms back and forward at hip level and up and said I had TOS, left greater than right, because my pulse changed.
I have severe pain these days in both shoulders, left arm goes numb and tingles a lot down into fingers. Right shoulder has a lot of new pain around joint and top of arm. Both shoulders ache all the time and I am having pain in right underarm and left breast area recently. Is this anything others have experienced? Who did you see for a diagnosis--PCP, vascular surgeon, thoracic surgeon, neurologist, etc.? Thanks for any information, I truly appreciate. Also, all I have to take for any of my pain is OTC, no prescriptions.

Most Drs do much more testing befroe finding a clear dx of TOS..

Have you had Xrays or MRIs of neck, T spine & shoulders?
to check for any bony anomalies or damage that might be treatable/fixable?
Possible extra cervical ribs?
some have larger bones that can be a factor..

I'd start with a good ortho if your PCP doesn't suggest imaging for you..
Once you get the results of the imaging then you will know if something needs to be looked at & fixed, of it nothing clear shows, most likely could be NTOS (nerve) - pain, tingling
VTOS would be swelling of arms , discoloration when raised, dull achy, heavy feeling in arms
Pec minor can be also a factor.. armpit /chest sx

Explore our sticky threads up above to learn much more than my quick summary..

Yes, many of us have experienced these symptoms.

I was diagnosed by both a vascular surgeon/specialist and a chiropractor.