Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-12-2022, 03:25 PM #1
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
Default VTOS My Veins Have Been Going nuts

Hi guys!

I've been lurking on the forum for a while and decided to make a post asking for some info I couldn't find.

I woke up after a crazy Covid fever on Jan. 1st with my left arm super swollen and blue.

Clot confirmed. I was given Eliquis and referred to a thrombosis specialist. The thrombosis specialist sent me to get a test for TOS. 2 months after my blood clot, I was told they suspect I have VTOS.

I have now been referred to a vascular surgeon. I have my first appointment with him on May 4th.

I should mention, there is a lot more to the story, I'm essentially giving the Coles notes.

I have a few questions for any of you that are willing to answer.

1. My veins in my left hand have been going nuts lately. From what my GP has told me, as long as I am on blood thinners, I should be fine. It just makes me super nervous. As an example, if I'm at work typing, the veins in my hand will become engorged. If I lift my hand up above my head, the veins go away and my hand goes back to normal. my right hand does the same but not nearly as bad.

I guess I'm looking for reassurance that this is normal for the condition that I have and I'm not in any danger. Also, working out really scares me. I would love to workout on my stationary bike, but the veins start to flare up and I get in my own head and stop.

2. Can anyone answer why Ativan would make my symptoms go away? I have never had any mental health issues in my life, but have some bad anxiety from all of this. When I take the low dose of Ativan I was given (0.5 mg), it seems to make the veins in my hand relax.

3. My Doctor has spoken to my surgeon, and I get the impression he wants to do surgery as a last resort. I live an active lifestyle and have quite a risky job. Obviously I'm on blood thinners and have been put on desk duty at work for now. If I'm on blood thinners long term, there is a potential I will lose my dream job, along with the active lifestyle I was living (Hockey, Mountain biking, ETC)

I have heard a few of my GP's patients have VTOS and are off surgery without surgery. Is this common now?


Thanks!

Gabe
FASANIMAL is offline   Reply With QuoteReply With Quote

advertisement
Old 04-12-2022, 10:38 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Location: USA
Posts: 27,238
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 27,238
My Mood: VTOS My Veins Have Been Going nuts
15 yr Member
Default

Quote:
Originally Posted by FASANIMAL View Post
Hi guys!

I've been lurking on the forum for a while and decided to make a post asking for some info I couldn't find.

I woke up after a crazy Covid fever on Jan. 1st with my left arm super swollen and blue.

Clot confirmed. I was given Eliquis and referred to a thrombosis specialist. The thrombosis specialist sent me to get a test for TOS. 2 months after my blood clot, I was told they suspect I have VTOS.

I have now been referred to a vascular surgeon. I have my first appointment with him on May 4th.

I should mention, there is a lot more to the story, I'm essentially giving the Coles notes.

I have a few questions for any of you that are willing to answer.

1. My veins in my left hand have been going nuts lately. From what my GP has told me, as long as I am on blood thinners, I should be fine. It just makes me super nervous. As an example, if I'm at work typing, the veins in my hand will become engorged. If I lift my hand up above my head, the veins go away and my hand goes back to normal. my right hand does the same but not nearly as bad.

Normal for VTOS- similar positions to that is one of the tests they do

I guess I'm looking for reassurance that this is normal for the condition that I have and I'm not in any danger. Also, working out really scares me. I would love to workout on my stationary bike, but the veins start to flare up and I get in my own head and stop.

Unfortunately the arm positions for bike riding is a issue for most w/TOS. Arms forward plus neck is supporting the added weight of the head as it hangs out on the neck.....possibly a recumbent bike position would be less of a problem..

2. Can anyone answer why Ativan would make my symptoms go away? I have never had any mental health issues in my life, but have some bad anxiety from all of this. When I take the low dose of Ativan I was given (0.5 mg), it seems to make the veins in my hand relax.

Often symptoms can be magnified by anxiety....

3. My Doctor has spoken to my surgeon, and I get the impression he wants to do surgery as a last resort. I live an active lifestyle and have quite a risky job. Obviously I'm on blood thinners and have been put on desk duty at work for now. If I'm on blood thinners long term, there is a potential I will lose my dream job, along with the active lifestyle I was living (Hockey, Mountain biking, ETC)

I have heard a few of my GP's patients have VTOS and are off surgery without surgery. Is this common now?

Not sure what job , past injuries or other activities you do.. those can play a big part in avoiding surgery or getting worse..

Much depends on how good your PTs, DCs or any treatment provider is..
And how much you change your lifestyle to focus on recovering until you can go back to more normal activities.. upper body posture /alignment work may help.

Thanks!

Gabe

I suggest you explore our useful sticky threads section above on the main TOS discussion page.
So much good info saved there..
__________________
NT helpful FAQs -
.

NT Search -
.

These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-12-2022, 10:46 PM #3
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Location: USA
Posts: 27,238
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 27,238
My Mood: VTOS My Veins Have Been Going nuts
15 yr Member
Default

Our search tool can help find keywords, symptoms, etc ...
https://www.neurotalk.org/search.php
__________________
NT helpful FAQs -
.

NT Search -
.

These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-12-2022, 11:26 PM #4
Lara's Avatar
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Location: Whitsundays
Posts: 10,781
15 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Whitsundays
Posts: 10,781
15 yr Member
Default

Hi and welcome to NeuroTalk.

Quote:
Can anyone answer why Ativan would make my symptoms go away? I have never had any mental health issues in my life, but have some bad anxiety from all of this. When I take the low dose of Ativan I was given (0.5 mg), it seems to make the veins in my hand relax.
It's a muscle relaxant.
Lara is offline   Reply With QuoteReply With Quote
Old 04-13-2022, 09:33 AM #5
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
Default

Quote:
Originally Posted by Lara View Post
Hi and welcome to NeuroTalk.



It's a muscle relaxant.
I feel like I should have known that. That makes a lot of sense now.

Thanks
FASANIMAL is offline   Reply With QuoteReply With Quote
Old 04-13-2022, 10:20 AM #6
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
Default

Quote:
Originally Posted by Jomar View Post
I suggest you explore our useful sticky threads section above on the main TOS discussion page.
So much good info saved there..
I was having some issues with the search function. The sticky threads have been very helpful thanks.
FASANIMAL is offline   Reply With QuoteReply With Quote
Old 04-14-2022, 08:16 AM #7
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,315
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,315
My Mood: VTOS My Veins Have Been Going nuts
15 yr Member
Default

Welcome FASANIMAL.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 04-14-2022, 03:30 PM #8
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
FASANIMAL FASANIMAL is offline
Newly Joined
 
Join Date: Apr 2022
Posts: 4
Default

Quote:
Originally Posted by Kitt View Post
Welcome FASANIMAL.
Thank you!
FASANIMAL is offline   Reply With QuoteReply With Quote
Reply

Tags
blood, hand, surgery, veins, vtos

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
VTOS Reoccurrence? Emilina Thoracic Outlet Syndrome 7 11-11-2018 10:19 PM
Possibility of VTOS? taybm20 Thoracic Outlet Syndrome 8 11-06-2014 06:00 PM
My VTOS Laur3d Thoracic Outlet Syndrome 15 09-08-2012 12:27 AM
Musician VTOS surgery- need help! starlight17 Thoracic Outlet Syndrome 6 07-23-2012 12:58 AM
VTOS without surgery? nina987 Thoracic Outlet Syndrome 8 07-21-2012 03:46 PM


All times are GMT -5. The time now is 06:30 PM.

Powered by vBulletin • Copyright ©2000 - 2022, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2022 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.