[Nellyzen]

So I had a talk with him and he said it would be as simple as 3-4 days of 8 hour sessions and that's it.

Now of course to someone who is desperate like me, this sounds like the Mecca of healing. I can't be objective about this, I want my life back, who doesn't?

Needless to say it would be a very expensive "adventure" and if it doesn't work? I haven't even tried PT or anything else, I guess I am simply very impatient. I want it over like....yesterday...if possible.

Do I go to Chicago? Do I go live with some Buddhist monks who can teach me about patience?

[Jomar]

Doe she give any kind of guarantee?

I just don't know how he can say that only by talking with someone and not actually seeing a person in person..and doing an assessment..

IMO it nearly always takes time to get a handle on these kinds of injury/conditions..

Did you add up the total costs of travel, food, hotel and his fees for that kind of time frame work?
Did he give any fee or pall bark cost for that kind of treatment?

I'd do that first off - just to see if it is in your ball park or not..

[cyclist]

I don't know what to think about this guy.
8 hours a day of body work for 4 days seems pretty intense on the body.
And, promising a "cure".....just seems sketchy to me.

I have been to many highly reputable doctors and they just don't make promises like that...

How much is he charging you?

[Nellyzen]

It is very expensive, I think with travel, food, hotel etc it would be about 6-7k. If somebody could really cure me in 4 days, I guess it would be worth it no matter if you can afford it or not.

The question is...if TOS could be cured in 4 days there wouldn't be a person in this world suffering for months or years, right?

And how would the body be able to handle 8 hours of deep tissue massage, for 3-4 days in a row?

[cyclist]

I am wondering...is he willing to connect you with some of his previous patients so that you could discuss your questions/concerns with them??

When I told Dr. Jason Lee that I was scared of the TOS surgery, he offered to connect me with some of his previous patients so that I could discuss my questions/concerns with them. Now, of course, he is only going to connect me with someone who had a successful outcome...but still.... it shows he does have some successful outcomes and was willing to help me connect to another patient to get a patient perspective on it.

[Jomar]

All I can say is some things will work for some people , and some things won't... I know that doesn't help you decide though...


my best suggestion is to do lots of web searches for pts of his and try to get any direct info story from them..

[Nellyzen]

I can't find any reviews about him regarding TOS. Not a single one.

[kellysf]

I guess I'm going to split the difference here. If I were you, I'd try PT first, someplace closer to home. PT works for a lot of people (though it always made me worse). If PT or some other less intensive body work doesn't help you, then you can shell out $6-7K.

I know you want TOS gone tomorrow but most people don't have that outcome unless they have vascular TOS or cervical ribs. Some of those people are instantly better with surgery. The rest of us get out of this, if we do, gradually -- just like we got into it.

I understand your desperation and I share it. But I wouldn't trust anyone who says they can cure you in 4 days. Many of us with NTOS have over sensitized nervous systems that can't handle that kind of stimuli.

Good luck making your decision.

[cyclist]

I'll just say this...

Doctors who work alone, don't accept insurance and make big promises -- scare me.


I had an experience with a doctor who turned out to be running a wholly unethical practice. I think this is very rare, but it does happen. And, for me, I was horrified when I realized what was going on. In the end, I was grateful that I was not harmed and only lost some money from the ordeal. But, from now on, I only go to doctors at major medical institutions, or who are working in coordination with many other doctors at busy private clinics.


So -- please be careful. Its not only about the money, you also don't want to let someone harm you.

[Nellyzen]

I absolutely have concerns that go beyond the financial aspect of it, that is why I started this thread.

I have considered the idea but not very seriously simply because what sounds too good to be true it usually is...unless the guy is a genius. I also don't like it when someone tells me "I am your only hope".

Yes, I do want the TOS to go away tomorrow if possible but since it has taken so much time for other people, I understand it's a process...that's why I'm very wary when someone tells me they can cure me in 4 days.

I will def try PT first...I'm still adjusting to my condition and I'm just very frustrated.

He just sounds so much like a salesperson instead of a medical professional...basically doing the math for me ( since I'm losing money anyways because I can't work) trying to convince me it's actually not that expensive. Did not address my concerns very much, just kept telling me he can cure me and this condition is very easy to treat, but only by him.