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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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08-17-2007, 02:59 PM | #1 | ||
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Hello. I just came across this forum, and this is my first posting. I am very interested to read all the discussion about symptoms of TOS. I think I have caused some injury to the brachial plexus nerve in my right shoulder, and I'm a little scared, looking for some words of advice and/or encouragement from others with more experience. While I cant be absolutely certain, I do believe that this is --not-- caused by TOS in my case. But the symptoms seem so close, and I thought the experience of so many others on this forum might really be helpful to figure out how to best proceed.
Several months ago I fell while waterskiing, and when I hit the water my arm was hyperabducted rather forcefully. I had immediate pain behind my right pectoralis muscles, running up into the armpit. I also had tingling sensations in my thumb, and first two fingers (median nerve). The symptoms lasted several weeks. There was no swelling or bruising. The tingling was at its worst with external rotation of my shoulder, but seemed to resolve within several weeks. I thought I had recovered reasonably well. But recently, I began to have return of significant pain in the region behind the pectoralis major, around the side just a bit, and up toward the armpit. It's sharp pain, and hurts even to push down on the soap dispenser in the shower (in other words I don't have to push very hard at all to get pain). And I'm now getting a disturbing "funny bone" feeling down my arm and in my hand for no other apparent reason. The median nerve area of the hand and palm is what seems to be affected. I'm almost certain the pectoralis major is fine. And the circulation to my arm is fine. The pain is much more consistent with location of the pectoralis minors, and activities that aggravate my pain seem to be those that enlist the use of those muscles. My shoulder blade and shoulder function seem completely normal and pain free. I imagine there may be some tearing of the pec minor muscle, plus inflammation or scar tissue near the upper insertion that is compressing the brachial plexus causing the nerve symptoms that I feel in my hand. This is my best guess based on research and looking at the anatomy. Does my self diagnosis sound reasonable? I have complete motor function, no numbness, only pins and needles in my hand that come and go apparently at random, causing anxiety. I've also ruled out carpel tunnel, more or less. I am a little frightened about this. Does anybody have experience with an injury of this type? What are some likely options for treatment? I have just started down the road of diagnostic testing. Are there any particular diagnostics I should be requesting? As usual I fear the worst. I could really use some words of advice and/or encouragement. I am scheduling all the various doctors of course, but in the mean time I hope this forum may offer some help or maybe just comforting advice. Thanks in advance for your comments! Last edited by AnthonyEE; 08-17-2007 at 03:14 PM. |
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08-17-2007, 03:17 PM | #3 | |||
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I do want to add that an advanced PT person or even a few docs can do some minor adjustments or our RLNP did mild ones on my daughter.
But you hav eto look around and ask questions
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Search NT - . |
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08-17-2007, 03:51 PM | #4 | ||
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Wow, thank you for this wealth of information! It should give me a little reading to do...
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08-17-2007, 07:03 PM | #5 | |||
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hi, so sorry to meet like this! but glad you've found us. boy, i have to agree with you on one thing, at least. i don't think you have TOS... yet. but your injury is NOTHING to fool around with. this doesn't sound like a torn muscle to me from the sx you are describing i would guess more along the lines of a nerve root injury, i am sorry to say.
you are near mass general hospital, correct? so i would think you have access to some amazing docs in your neck of the woods. that being said, if it were me and i knew at (what i can only guess is) your age what i know now, i would probably seek the consult of dr. david kline (www.chinup.org/news/news1.asp) ASAP if there were any way in hell i could afford to do so. or at the very least, call his office and ask him to recommend the VERY BEST neuro at harvard for you to see for this. obviously, you are a very intelligent fellow. but i would not lose any more time trying to dx yourself. as i am sure you know from what you have gleaned so far, this is a highly complex area of the human body. not to mention, an extremely controversial area in medicine when you start bandying about terms like "TOS." use 'brachial plexus injury' - might go down much easier, my good man! you need immediate tx, possibly surgery to correct something like this. and i DO NOT SAY THIS LIGHTLY. this is serious. i know this is not what you want to hear. i am so sorry this is happening to you but i do believe your chances for recovery are good if you act quickly to seek the proper tx. i'm almost reluctant to give you this next site. but because it may lead you to some good practitioners in your area, and i assume you are a grown-up and able to make healthy decisions here ya go: www.rsi.deas.harvard.edu. keep this in mind for when you need to find a good PT or bodyworker... maybe also they can help lead you to a neuro, PM doc, physiatrist, or even a surgeon. who knows. as far as the diagnostic testing goes, get the consult squared away with the BEST surgeon you can find first. let the surgeon run the show (s/he will, anyway). don't waste a lot of time or money on tests now which your surgeon won't even look at, is my point. by the way, if you don't need surgery, GREAT! let a surgeon tell you that, though. you still need a consult. that is all i am saying here. because from what you are telling us, you could have yanked part of the neurovascular bundle out by its roots and i don't wonder you are afraid. you will feel much better knowing than not knowing, in my experience. knowledge is power. you cannot afford to fool around with this. this type of injury DOES NOT HEAL on its own. we have a few posters from MA. i can think of 2 off the top: finz and dolfinz (yeah, i know. don't know what's up with the flipper theme, couldn't tell ya what the deal is there...). so hopefully one of them will see your thread; if not shoot them a PM and ask specifically for a TOS-savvy dr. referral, or 3 or 4. save your **** a lot of heartache that way. doesn't matter that TOS may not be your cross to bear, if the doc knows TOS they can handle a BP injury like yours. it all goes together. sadly. the links our lovely jo55 gave you i believe are from the stickys up top. more where they came from. you can also subscribe to the journal of brachial plexus and peripheral nerve injury through biomed central at www.JBPPNI.com for free which you might find helpful. another one is the 'sorehand list' via www.ucsf.edu - just enter the word "sorehand" in the search bar and you should be able to find it that way. access to the archives on either one might lead you to some very specific stuff you could call up re your particular sx... the search and advanced search functions on this forum, located in the upper righthand portion of your screen, will help you find more than you ever wanted to know about TOS and any one of us bums, er i mean incredibly helpful folks hanging out on this board... good luck to you and if you find that you do have more questions as you read through some of the medical literature please feel free to ask. just keep in mind that you are in danger of getting responses if you post here - we are not docs, but we ARE experts on TOS, from the inside out!!! albeit unwilling onez... alison "Be Brave" Last edited by Sea Pines 50; 08-17-2007 at 07:07 PM. Reason: taking the 5th |
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08-17-2007, 08:48 PM | #6 | ||
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AnthonyWelcome. You will find some of the best information from the people who have already posted on your thread and others who will follow. I do not have medical info to supply just moral support. I will never profess what you should do but have great confidence in the people on this site who give you very informative information. I feel as if they are family and you will be considered as one also. Good luck. Linda
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08-20-2007, 10:01 AM | #7 | ||
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I want to sincerely thank you all for helping with my question. This forum is clearly very active and most impressive. I never imagined that an innocent water ski day would make me a member of a such a club as this, but I'm overjoyed to know there are people out there like yourselves so willing to help. Hopefully I will get through this awful experience, and maybe lend a helping hand to somebody else one day in return.
So Sea Pines 50, your posting is comprehensive and much appreciated. (But you sure do know how to give a guy a first degree panic attack ) Perhaps some more precise detail about the injury and sequence of events would be interesting, and also help to see my situation more clearly. (so here goes, sorry for a long winded posting...) I actually got this injury one year ago, aug 13th, last summer. The injury was to my right arm and happened just as I said in my original posting. The following morning I spoke by phone to a shoulder surgeon about this. His advice: give it a week or two and see if it resolves. Probably stretched the BP, and a few muscles as well. So I followed this advice, and in about 4wks I was nearly symptom free. I did have a minor flair up of muscle pain after throwing some bread to the ducks, but no nerve symptoms. Then I went a full seven months symptom free. I figured this scare was behind me. Then I got rotator cuff repair on the left shoulder, by the surgeon I previously mentioned (did quite well with that). So the right was now my dominant arm for at least two months while left was in a sling. This must have aggravated whatever situation I have going on in there. The muscle pain came back fairly sharp, still no nerve symptoms. I gave it the usual 4-6wks to heal and it did. But then at about 8wks I pushed myself up from my chair using my arms and got the nerve twinge in the first three fingers and thumb. It was the same feeling I had at the time of the waterski fall. So it has now been 3wks since the return of these nerve symptoms. They seem to come and go, and it feels as if I have a little knot inside my right armpit, causing nerve symptoms down my arm into the median part my hand. But there are no knots or abnormalities that I can feel to the touch, it's just the sensation I have. This sensation of a little knot and the pins/needles of course causes me to have a very large knot inside my stomach -- it causes me great anxiety with which I am now struggling (and suffering might add). Here is what I've done so far. Saw an ortho PA at top rated New England Baptist Hospital (NEBH). He ordered shoulder MRI which we reviewed to find nothing abnormal. He referred me to a good shoulder surgeon at NEBH (but not the same guy that did my cuff repair). He said shoulder MRI was not the correct study, that a BP MRI should have been ordered instead. So he did a full shoulder exam and said I may have injured BP, that it could take 1-2yrs to fully heal. Otherwise shoulder seems fine, and pec major/minor are not torn. He referred me to physiatrist that I will see this friday for EMG, and to decide if BP MRI should be ordered. My sense is that this surgeon is extremely competent, but maybe not so well versed in TOS/BP issues (?) Also saw my general practice doctor who gave me the following advice: (1) continue on the present course with NEBH and demand BP MRI (2) try not to worry too much about this because if symtoms resolved completely for seven months then nerve is likely in very good condition. Probably inflammation or scar tissue secondary to muscle injury causing nerve irritation or compression. (I don't know how much credibility to put into this advice, but he is quite a good doctor in my past experience), and (3) consider SSRI based on fact that I've had such a string of injuries and difficulties in the last 1-2yrs that it has put me in a not so healthy frame of mind. I looked up Dr David Kline, and found he has excellent experience, but is in Louisiana (I'm in Boston). But could not find a phone contact for his office. On the one hand he seems to be exactly the type of doc I'd like to have overseeing this, but on the other hand I don't want to create chaos by contacting many doctors in parallel. But I do want to get connected with one lead specialist that knows about TOS/BP that can run the show effectively. Maybe I should find a neuro doctor specializing with BP and peripheral nerve injury. If anybody has contact info for Dr Kline I'd be really appreciative. Or to other good TOS/BP specialists in the Boston area: MGH, BIDH, NEBH. Any other comments or feedback based on the above additional information, also greatly appreciated. Many many thanks! |
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