Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 08-20-2007, 06:54 AM #1
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Chat All in your head

Have any of you experienced the following. After tests that do not show anything and are mostly normal that the docs say that it is pyschosomatic. I only ask this question now as if you do not fit neatly into a diagnostic category then it is 'in your head'. It has not happened to me as such but I was just thinking back to a resp doctor who was called for a consult for my resp problems but took it on himself to note that my pain did not seem to be organic and he could not explain. He then went on to suggest that other docs needed to look at my psych make up and that I was demanding more analgesia than on pre surgery - yes well on virtually none pre surgery as problems with opiates, so not hard to be on more, plus cons told me I must take pain meds and ask and not suffer in silence. So he implied I was a hospital hopper, a malingerer, wanted drugs or and possibly munchausens!! Charming doctor, he never said this to me but put it in writing to a doctor. Thankfully I was told so that could complain as it could have had devastating effect on rest of treatment etc..Needless to say I do not see him for resp care!!

Also asked as I read a very interesting article I think cited on forum (very long) about the prevalence of diagnosing or referring to psychiatrist and dismissing pain as actual just because they cannot find something wrong. As it stated if a fisherman goes out to sea and returns with no catch, it does not mean there are no fish in the sea!!

Also the article stated that the more intellectual and less likely to say yes doctor and agree the stated treatment the more likely you are to be cited as being non compliant and unhelpful with many doctors BUT not all - thankfully!!
Sorry if slightly off topic but interesting I thought.

Best wishes my forum friends
Hx
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Old 08-20-2007, 09:33 AM #2
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I had an incident, years ago, before surgery when I was trying to get dianosed where a neurologist told me there was nothing wrong with me and to get on with my life. Was not the answer and did not help at all. Never went back to him again. After disc surgery I needed more meds and I believe they thought just looking for prescriptions until finally diagnosed with TOS and the proper surgery performed. I don't want to take too much medication but when you are in pain, there is not much else to do. Depending on your diagnosis and doctor recommendations. But it is tough to have a doctor tell you there is nothring wrong when you know there is. Thanks. Linda
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Old 08-20-2007, 02:41 PM #3
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I know exactly how you feel- the first PM dr. that I was ever sent to- and I don't mind stating this at all- was a QUACK as far as I'm concerned, plain and simple. Since he couldn't "see" anything wrong with me, or the MRI's didn't show anything, etc. (you know the drill), then I must be making this up and looking for drugs, even though I told him from day one that I did NOT want to be on any narcotic drugs (I didn't need them then and don't need them now). He was an *****. He didn't believe me until a CT scan that he grudgingly ordered (just to pacify me), came back with a radiologist's report of small cervical ribs and he said, "hmmm, there may be something here that explains your weakness of your arm and dropping things," although he never once apologized- naturally. Several years later, I was in a wreck and not being at fault, I had to deal with the other person's insurance to get them to pay my chiro's bills and they gave me a hard time, and requested all my drs. records to "review" and I also got a copy of them. In my PCP's records, there was a copy of a report that this PM dr. sent to her and in it he states "that there appears to be nothing obvious wrong with this patient and that he feels that I am drug-seeking".....To say I was LIVID would be an understatement. So now that sits in my permanent medical records and as far as I know there's nothing I can do about it because he's the dr. and was just reporting what he felt was true, even though there's no other report from any of my other drs. mentioning anything like that.
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Old 08-20-2007, 03:05 PM #4
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Heart feel the frustration

Hi Hx,

sorry to hear your troubles....I too have had this disgusting response from ignorant doctors. I have had docs tell me to go and live in pain....UNACCEPTABLE !!!!!!! What was that very clever quote from a good movie.....stupid is as stupid does????? did I get it right??

At any rate idiots the bleeding lot of them! Need a new referral to a doctor who actually worked with pain to get a degree... coventry has a good pain center do they not???
http://www.iasp-pain.org/AM/PrinterT...ContentID=1293
http://www.nbpa.ac.uk/
http://www.tamethepain.co.uk/Therapy...ment/index.htm

do these help???
can I do anything else...please let me know I would be happy to do what I can for you.

love and gentle hugs,
Victoria
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Old 08-20-2007, 03:54 PM #5
redjpwranglergirl redjpwranglergirl is offline
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Quote:
Originally Posted by gibbrn View Post
Hi Hx,

sorry to hear your troubles....I too have had this disgusting response from ignorant doctors. I have had docs tell me to go and live in pain....UNACCEPTABLE !!!!!!! What was that very clever quote from a good movie.....stupid is as stupid does????? did I get it right??

At any rate idiots the bleeding lot of them! Need a new referral to a doctor who actually worked with pain to get a degree... coventry has a good pain center do they not???
http://www.iasp-pain.org/AM/PrinterT...ContentID=1293
http://www.nbpa.ac.uk/
http://www.tamethepain.co.uk/Therapy...ment/index.htm

do these help???
can I do anything else...please let me know I would be happy to do what I can for you.

love and gentle hugs,
Victoria

Yeah- Forrest Gump- "stupid is as stupid does"- one of my FAVORITE quotes- I use it quite often. Sadly, there's alot of STUPID in the world, namely some drs.
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Old 08-20-2007, 04:51 PM #6
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Cool

My TOS was caused by a medical procedure where they screwed up. During the lawsuit which followed they actually tried to blame the problem on the fact that when I was 5, in 1969!!, I broke my collarbone! They gave me doctor releases for doctors I had never even heard of! Between doctors and lawyers it was a pain. My lawyer was great. My favorite statement, during depositions became "I do not recall". Can't get in trouble with that one!

Good Luck! Linda
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