I got my CPP in 6 weeks first try. I didn't expect it, neither did my Dr. They told me on the phone that the decision is not usually made that quickly, but that my Dr.'s provided a great deal of evedince of my disability.
I too did what Victoria did with the application. I also had my husband initial all the areas he did the writing or typing for me. They also said that it was helpful to know what my day to day life was like(I provided a timeline of a typical day).
If you need any help or more information, please pm.
Trix

Hi and thank you girls for the info i no that they usually refuse the first time in fact i was on the cpd sight and they even say that they do that i had to laugh when i saw that. But yes the idea of writing a letter and telling just what life has been like sounds great and i will try. I just wrote a letter the other week for comp and i used that dragon speak and i read it very quickly and sent it off then the next day i sat down and read it oh my god i could not believe just how bad it was. It sounded like i was drunk or something when i wrote it i could hardly understand it. So i now know that i will have to do up a letter first then just read it to the computer and let it type i will never try and just do one by talking to the computer again the worsts part is that not only is she going to read but the company will get a copy of it to i am a very good letter writer and i always call a few of my friends and read it to them to make sure it sounds good. But not this time how embarrassing this is going to be lo lo. I do have the faith though that i will get cpd just because of all the doctors letters i do have and then my doctors and that i am waiting to get into a pain clinic because of the meds i have to take and the fact that the doctor wont let me drive and i can't do to the pain and i am now losing my fine motor skills i think will help as will. Any ways i will let ya know how it goes and if i need any help when i go to fill out the forms i will be in touch thanks. By the time i am done with all this i think i should write some kind of book like a my life with TOS and comp and cpd story lo lo oh will every one take care and hang in there

Hi there will i checked out the CPD forms on line and i don't think i am going to be able to fill them out do to my hands so i am going to have to go in to the office and hopefully they will help me out with filling them i am going to do a letter up with the dragon speak or at lest try lo lo. I did find it odd that you just can't fill them out on line then print them off and sign them send them in but they only let you print them off and then you have to fill everything out by hand. I am going to wait till the end of the month do to the fact that i will have had the tutor here and see if i can do this schooling from home that ways i if i can't i can tell them that as will which i would think it would help my case. I truly don't believe that i will be able to do school i have tried on my own and i just couldn't concentrate or keep anything in my head long enough to write about it but i need to try and see if having some one else with me can help keep me focused on the task at hand. If not then i will just have to wait till i get in to the pain clinic and see if they can't get me off the drugs and some thing else for the pain. In fact i have been in such a flare this past week i just wonted to cut my arms and shoulders off lo lo. I hope when i go in for my message again that she can do some thing for me i went last Tuesday and it did help i felt pretty good when i left but within a half hour of being home the pain just got so bad all i could do was lay in bed and cry. Will i guess i better go i have to make some calls now that the pain is not as bad so take care out there hope you have a pain free day.

I've been looking through posts on tremors and found yours. I have severe vascular TOS on the left and neurogenic bilaterally. Although definitely present, I do not (yet?) experience nearly as much nerve pain and/or as many neurogenic symptoms as a lot of members of this forum. My arms always feel heavy and ache incessantly, and my left hand is numb and tingling 24/7. My right has it's moments. Baclofen seems to control the actual shoulder and neck pain, but if I forget it or run out, you better keep away!

The "real" reason I'm writing is because of the tremors that have started. My husband actually said something about it about a year ago. When I was kissing him goodbye one morning, he said that my lips quiver when I kiss now. I had started to notice that too. It also happens when I drink out of a glass, putting pressure on my lips. Then I started having muscle jerks, even in my legs, but mostly in my arms, and one time my head. You guys are right - that is SO embarassing. My kids think I'm doing it on purpose. I've actually thrown a pen in the process, screwed up my writing several times, and one time even spilled my drink down my front.

Most recently, my hands seem to be doing what my lips do. Whenever I try to use them to push something, open something, squeeze something, or otherwise apply pressure to them, they shake uncontrollably. I wasn't sure if this was TOS-related, but it seems you all hold the answer to that. Is the nerve damage reversible or will it just get worse? Will PT help - or will I have to have other procedures done to stop/ease it?

I've only just made it to one of very few docs in SoCal that will take TOS cases. He's starting me on PT, but he said it's only to please my insurance company (Aetna HMO) and eliminate any chance of them giving me more grief! He's 99% certain that PT will do nothing to keep me out of surgery (because I have no arterial or venous circulation when my arm is straight out and upward), but I'm hoping it does some good with the neurogenic issues.

Can TOS cause neurogenic symptoms in my legs too? They're very minor in comparison, but my left foot gets numb and tingles and I have tremors there sometimes too.

I wish we could all find a TOS God that knows 100% of everything about our condition - AND how to fix it!

Carrie
o2bponca

I think quite a few of us end up having leg, hip or any lower extremity symptoms of some sort.

I think it is the fascia connection, it all starts to get sticky and bound up causing all sorts of annoying problems.

But that is just my theory and from what I leaned by reading Sharon Butlers RSI book . She does Hellerwork and branched off to study RSI when she got symptoms of it.

I also have some minor long time misalignments that I think contribute to my hip/shoulder/rib symptoms. 35 yrs of being misaligned doesn't get fixed quickly.