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In Remembrance
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Join Date: Aug 2006
Posts: 1,002
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In Remembrance
Join Date: Aug 2006
Posts: 1,002
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Lyrica and Topomax
I took Lyrica for about 8 months and Topomax I tried and failed, and now I take 50 mgs. in the AM and that's it. I do NOT increase that doseage, and if I suffer from it, I will stop again.
For me, these two drugs were / are the "Twin Devils." I highly warn anyone taking them to read the full list of side-effects and be aware!!!
I did not know side-effects as at the time I was so sick I just did what my doc said...
Lyrica. Within three months I gained 50 lbs. At six months - when I had NEVER EVER had any high blood sugar - my sugar went to 500 and stayed there. I lost my eyesight - almost to the point of total blindness - couldn't read, couldn't watch t.v. except for sound and big blobs on it, couldn't see faces and certainly couldn't read emails or check this Board. And, no relief on pain - in fact, more. I had kidney pain and it was really bad. So I stopped it and lost 60 lbs. in about 6 months with ease. But the blood sugar stayed at 500 so I started having ER needs, and it was all Diabetes, so now have it regulated by twice daily checks and oral meds 3x day.
Topomax. Most people know this story from a couple of years' ago. Started Topomax and felt some relief at first. Lost 20 lbs. Couldn't sleep. Doc said to get up to 125 mgs. per day. At 100 I kept having manic-depressive episodes where I can't even remember days of no sleep / talking / walking around, then I'd crash for days of sleep and SEVERE depression. This drug affected my speech centers, making me sound drunk or high when I was NOT, and my family (after two episodes) assumed I was abusing my meds and turned on me. It was all the Topomax, and close family knew that, but again, it was humiliating for others to view the effects of Topomax.
The docs have not agreed that either of these meds caused me any discomfort or problems...
But I KNOW this to be true, and others have privately agreed with me, so I want to WARN newcomers to be so careful with any new med, and especially if they are prescribed these drugs, to watch for the danger signals.
I put this out with love and concern.
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09-16-2007, 10:33 AM
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