[ginnybean32]

Well guys I did my best to stay away so I wouldnt hurt myself by typing..I recently had some dental work and my TOS pain went through the roof...always does if I over do...but then my tongue swelled and started dancing on its own. I had lock jaw and couldnt eat or drink because it hurt so bad. I ended up in a psych unit for three days due to the depresssion. because no one understands this disease...I got diagnosed today by an ENT as having triangle neuralgia..(cant spell it). The worst suicide pain in the world its called...and let me tell you if it werent for my kids and my psychiatrist and hubby I would have let myself die...

Ive had this problem with getting numb and mind blowing pain after every time I have work done on the left side. The same side I had my rib out and my LTN decompressed...Now due to all the muscle spasms I am starting to wing again. Its like all that surgery and pain for nothing...They want me to go back to a Neurologist and have more tests..I know it will keep me in this flare as well as incite the TN to act up again. I dont have enough weight on me right now to go through it again. I have to make myself eat but im having a hard time swallowing, and because my doctors think Im more a mental patient right now they are doing nothing..they are waiting for medicines to not interact on me and control this debilitating depression.....so I wait in pain for this to end.

I know I was happy getting off the roller coaster to no drugs..Im sensitive to everything they give me now. Once you go through rehab you are hyper sensitive to all the pain meds...and the one time you need them you cant take them. I will survive I will get through this without depression...at least im trying. Thank god for some of you staying in touch and keeping my chin up...I couldnt see the light at the end of the tunnel but I do now...well a little anyway. Thanks for letting me vent.