Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-22-2007, 02:42 AM #1
tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 1,002
15 yr Member
tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 1,002
15 yr Member
Arrow Spouses / Caregivers

I have noticed that when I am at my worst pain-wise that fiance / caregiver does a nose-dive himself. Of course, this makes the pain worse. But he seems to get irritable, angry that I'm sick...it makes it so hard for me to be in so much pain, and for him to have so many questions - his need for conversation is overwhelming at these times.

Does anyone else notice this odd behavior? Is it odd? Is it a fear that I may never return from pain-land...deep, far away, suicide type pain, and high-pain...

Does anyone do anything special to avoid caregiver burnout?

My fiance ran away last Spring to French Polynesia - on a spur, by himself, in grief.

Has anyone had this? What do we do - get a Tshirt that says, "I'm in high pain, I love you more than anyone in the world, please let me be?" (I'm not kidding.) Maybe we need Pain Tshirts - med pain today, ok to talk to me...


PS: Right now is a time when I really rely on the support of this group. The pain can be mind bending.
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