Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-06-2007, 03:49 PM #1
horsemommy horsemommy is offline
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Default surgery or no surgery???

any thoughts? pro or con?
It looks as if I'm going to need a rib resection with sclenectomy
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Old 11-06-2007, 04:20 PM #2
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As has been said so many times, get yourself to a top surgeon, with a lot of experience doing these surgeries. Take their statistics regarding success with a grain of salt.

I had a surgeon is SF who has done about 90 surgeries. I liked him and he provided good follow up. The surgery just didn't work. In the 3 years since surgery, I have gotten much worse.

But other people here have had some success..Maybe they will weigh in.

Kelly
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Old 11-06-2007, 08:30 PM #3
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I'd say my rib resection and scalenectomy improved my headache, circulation, RSD situation - but I cannot say that for everyone. In fact, no one should tell you one way or the other. It should be your own personal decision.
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Old 11-06-2007, 11:22 PM #4
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surgery was a walk in the park compared to actually having TOS.

my hand symptoms are better thus far, but my back still hurts a lot.

i am 10 weeks out on the right side, and 5.5 months out on the left side.

I saw Dr Ahn in LA, he does two surgeries every monday, and is considered quite and expert in the field. I would highly recommend him if coming to LA is an option.
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Old 11-07-2007, 12:45 AM #5
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Hi Horsemommy,
Surgery is going to have to be your decision and you should do your homework and research. Johanna did a great research thread on surgeons and you should read it if you haven't yet Titled, DOCTORS and PT List for TOS and is the 10th post on this thread http://neurotalk.psychcentral.com/showthread.php?t=135.
I had my first surgery 2 1/2 years ago which I though worked until 8 months later I begin having sever arm pain. I had to have a redo a year after my first surgery and 3 days post op I developed RSD... I had a top surgeon that was very experienced but I didn't have a good outcome.
So as you can see this is a decision you need to make on your own and do your homework before you have surgery...
Every case and every outcome is different some are good and some not so good. Know what you are going into before you go there.
Best of Luck to you
&Dawn
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Old 11-07-2007, 12:45 PM #6
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Default No regrets here

I would have surgery again in a second. After surgery my pain relief from TOS was instant. I had acute pain from the surgery but the numbness and tingling went away almost instantly.

I was very happy to get rid of the symptoms....I had a very vascular problem so the relief was great...no more hand swelling.....

So I am pro surgery!!

Love and hugs,
Victoria
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