Prayers for your son and your family. My heart goes out to you.

gibbrn: "I had venous tos as well and had rib ressection and scalenectomy due to 80% occlusion in my right side subclavian vein."

How did you know it was 80% Vic? Was your test dynamic in different positions? Mine says 60% with my arm down but the venogram wasn't done in any other position. The docs said to assume more as my dynamic ultrasound showed a full blockage of various vein, arteries as my arms are raised

BTW-I only get the swelling with USE. I was told not to do anything vigorously and I watch the arms and see that I can avoid the swelling if I avoid living my life. ok, a stretch, but that's how it feels to be so limited. (not that i could do much post my other surgery. my goal is to recover from that and then pursue the release of the neurogenic plus vascular TOS.

I wish you and your son the best. I too have heard that when sudden onset is combined wth short term suffering and young age, the chances of a pretty full recovery are on your side. I know of one case that was treated like this and the man has never looked back 15 yrs later. He had both sides operated on in Denver in his 30's due to accident. He did not have any RSI and made a full recovery. Please realise that many of the one's that make a full or fuller recovery aren't spending time on this forum so don't get scared thinking that those of us with many post-surgery issues or with multiple diasnoses are the norm for someone with your son's issues.

Hi fern,

I had a veinogram and was put into provocative positions like the superman and arms over my head and out to the side so that is how they found my obstruction percent.

I also had a dynamic ultrasound and had total obliteration of my veinous flow so that is why they did the veinogram to see exactly what was happening

I am still getting some swelling but no where as near the swelling I had before the surgery.

take care
Love and hugs,
Victoria

here are some informative and interesting Articles, posts & threads

TOS surgery: long-term functional results and other related topics
http://neurotalk.psychcentral.com/sh...ad.php?t=17275

Sternocleidomastoid Syndrome and other articles from Chiroweb
http://neurotalk.psychcentral.com/sh...ad.php?t=16671

video link of Foam Therapy Roll = use & techniques-
the final part is what the adv PT suggested for me to do opens chest/pecs and drops shoulders
http://www.youtube.com/watch?v=4pQkgyYeV30

other therapy videos- explore
http://www.youtube.com/watch?v=vAjIH...elated&search=

Article on TOS and Chiropractic {thread}
http://neurotalk.psychcentral.com/sh...d=1#post139035

Our symptoms listed-
http://neurotalk.psychcentral.com/showthread.php?t=5618

these are from our useful sticky thread, and there is much more too-
http://neurotalk.psychcentral.com/showthread.php?t=84

I thought I had posted on the thread already
So a belated "Hello" and I hope we can give you some info and knowledge to calm your anxiety about your son's upcoming surgery.