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In Remembrance
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Join Date: Aug 2006
Posts: 1,002
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In Remembrance
Join Date: Aug 2006
Posts: 1,002
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Research on Reynaud's and Scleroderma
As I've discussed, since July I've had to go to the ER quite a few times now for hardening of the muscles of my chest and upper abdomen, and difficulty breathing, with irregular heart beating and additional pain.
I was screwing around the Net and happened upon Reynaud's Syndrome, which some of us have with our TOS, and then saw that there is a relation to the disease of "scleroderma." The symptoms of scleroderma (slow diffuse kind) are uncomfortably close to those I've been experiencing. (Including the facial pain.) The majority of scleroderma patients also have Reynaud's.
Dr. Brantigan (when he examined me) said I had another disease process besides the TOS condition - that most likely it would not be identified but was causing inflammation and pain.
I am not going to diagnose myself off of the Net - but, I am going to later seek a second go-round with a rheumatologist, as the initial testing showed positive for one of three markers of an inflammatory disease.
I am sharing these links with you guys not because I think anyone has scleroderma, but, just to expand our understanding of TOS and Reynaud's, and Reynaud's and scleroderma...our generally "as good as doctors" research that we all keep doing as we seek some kind of cure or management of our TOS and its various symptoms.
Has anyone been diagnosed with Reynaud's? I will have to see my old reports - as my surgery helped remove most of the color change issues in my situation.
http://www.everydayhealth.com/public...=1&searchTerm=
http://www.everydayhealth.com/public...=2&searchTerm=
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12-01-2007, 12:14 PM
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