[tshadow]

I am very limited right now on what I can do or talk, as I am very short of breath.

I've had about 6 emergency room visits, tons of cardiac type tests, and CTs of upper area, ultrasounds of abdomen areas, and basically, here's where I'm heading.

Thank you very much for certain peoples' thoughtful, long and complete emailsto me. And also, thank you for thinking your ideas might tie into my situation also.

In the 80's, those were my young child-bearing years. I used to get terrible periods, where chunks of blood would just fall out of a tampon and large pad - kerplop! I had so much menstruation, that for two days of each month, I had to take care of it, rather than work or go to school. But NO doctor would believe me or listen to me when I described it - they just ignored it like they do.

So then I got pregnant with my second daughter, and I had the BEST ob/gyn doc in the world. When he opened me up for the cesearean - (which was a big deal already since he believed when I told hiim how hard and sick my delivery way - I won't go into details, but I had several runs of antibiotics, my entire body went septic, and my bottom looked like a crazy quilt. (A-holes.)

So now we're having my second baby, and the asst. surgeon goes, "omg, she's got severe, advanced endometriosis. She needs to come back in several months and get this all cleaned out. Didn't she ever complain? I can't imagine her being able to function very well with this much bleeding tissue all over her cavities. I don't see how you can save the uterus at this point." Then they noticed I heard, and I said, "what are you saying?" They said they were talking about another case. I was 26. I HAD been complaining...but never taken seriously. There is something about me that the docs don't believe my pain, etc. - I am finding that out, as my OWN current doc told my attorney, "she looks so happy and seems fine, are you sure she just doesn't feel like going back to work?" And he's the guy I come into the office in pajamas, have cried, try not to cry, describe teh excruciating pain, but try not to be a pain in his *** - and I am so appreciative when he gives me the botox and told him that in five years, that is the ONLY relief I've ever had from the non-stop pain, and that there are times I can barely hang on from taking an overdose of pills.

(I did have the hysterectomy and all of the uterine tissue removed from all over my inner cavity. It was so great to no longer have those pains! My health improved as I was able then to jog, work out, etc., every day, which I continued until TOS.)

So anyways, I have had rechecks and do not have any bleeding or recurrence situation. I don't have a uterus. (But it FEELS so large.) I've had an abdomen ultrasound just to make sure that there aren't ovary cancer issues. Liver cleared. Kidneys "ok" right now. Lungs I cleared out the adelectosis (where the bottoms fuse, by breathing very full breaths as a P/T.)

So this new thing seems to be that the TOS pain causes these upper muscles to pull very, very tight, like a corset, and so I can't get full breaths, and start to get light headed as well as panicky, and ultimately, if it gets really bad (like in heat) I have to go to ER and get a morphine shot and nitroglycerin under the tongue. (Oh also, heart / angina cleared.) The only test result that does show are EKG infarctions of the type that prove the electrical (nerve) currents are malfunctioning and failing to maintain a good, regular heart beat.

It does stop movement, ability to eat (because the area is so tight) and bowel movements come to a stop for over a week.

I've attacked that with my strong regimen of psyllium fiber and just a perfect diet for fiber, organic and fluids. (I feel like the flying Nun.)

The air out here is course, dry and filled with visual particulate - heck, we get smog. I have always been so very, very sensitive, I wonder if the bad air (not clean desert air) forces me to breath harder, which then causes my TOS to have to fight harder for breathing, which then has that rebound effect of inflammation (which comes from ANY type of body movement effort) and the inflammation is locating at the lung muscles.

Now, getting my doctor to listen to ANY of this, I might as well blow my brains out here...

God bless you and thank you for helping me to work this thing out. They are little puzzles, and we seem to be the ONLY people who are willing and able to piece them out.

I will always be happy to piece out a puzzle for you, (I mean spend days / weeks trying to find it out) and anytime you need a friend.

Your kindness has really impressed me. THANK you.

Love, TAm