NeuroTalk Support Groups - Question: Who's Had TOS The Longest?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)

- - Question: Who's Had TOS The Longest? (https://www.neurotalk.org/thoracic-outlet-syndrome/33185-question-whos-tos.html)

I've had tos since 2002

So I guess I have been bitten by the tos bug for almost six years now!!!
thanks for this thread tam!!!

love and hugs,
Victoria:hug:

Quote:

Originally Posted by ozzy14 (Post 264855)

Iv had TOS since around 2000, had a fall ini 1999 that started symptoms. Only diagnosed in 2005 after insisting on MRI, Ultrasound Doppler tests etc. I do loose my pulse so I dont know why it took so long to diagnose, just one arm movement would of saved me 5 years of pain and thinking "its all in my head" (thats what the Dr's told me anyway!) I have great glee in taking in my results now. I just put them in front of the Dr and sit back and wait for their response (workers comp Dr's love this). No more im crazy or "I find it hard to believe what your telling me" comments. Its a lot better visiting these so called specialists with my results! I didnt find your post offensive at all. If you dont want to reply, dont. Every little bit of info I can find out about TOS and people living with TOS the better for me.

Hope everyone is having low pain day!

Ozzy

Lol............I think most of us have gotten the "it's all in your head" treatment at some point during our quests for a dx and tx :p

Hi will i am not sure when i got TOS i was first diagnosed with Bilateral Carpel Tunnel in Sept 2004 then i had surgery done on both sides went back to work in May 2005. In the first week back i had the same symptoms i got off the ship the first week of July it wasn't till the end of August 05 that i was diagnosed with TOS. Had surgery done on my right side the end of August 07 and it did not work so i still have bilateral TOS.