Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-02-2008, 12:00 AM #31
Missa Missa is offline
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Join Date: Dec 2007
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15 yr Member
Missa Missa is offline
Junior Member
 
Join Date: Dec 2007
Posts: 27
15 yr Member
Unhappy

I guess as of right now I am going to reschedule my Ortho appt. Number one reason being that my mom/sis were unsure if he would really look at the whole picture and not just look for an injury. I don't want to waste my time with a Dr. who isn't going to take this seriously. So for now I will just wait until my Primary refers me to an Ortho, if he thinks it's necessary.

The past couple days I have been okay with the pain. I take Vicodin only when I really need it and even then, I only take half a pill. Today, I have not taken any. However, for the past 2 weeks I've been having what you might call headaches. I'm not sure. I get random pains in my head. Sometimes it feels like a cramping. Sometimes it's just a weird twinge. It's usually on the right side but I have felt it on the left also. Sometimes it seems to feel as though it comes from the back of my neck and travels up. Sometimes it feels like it's right behind my ear. Could this be a blood vessel or something? Something being compressed. I wouldn't really call these headaches but when I first mentioned it to my primary he kind of just brushed it off as migraines. Maybe that is what it is but I don't know. I constantly feel like I'm in a daze. It's so weird. I just don't feel right. Could this be the Vicodin? Is my body striving for more and because I'm not giving it, this is how it's reacting? Is it stress as one Dr. assumed? Or does it stem from all my muscles being so tense and hurting so bad? I just don't get it.

I'm tempted to go back to my primary tomorrow and push for a ct-scan or mri of the head. I just don't think I should be having these feelings... and pretty much constantly. What would you do?

Also, for the past couple days I am so unbelievably sore on the left side... but not the front, it's the back now (trapezius muscle?) Also, when I just run my fingers lightly over my left arm near the elbow, it hurts. And I mean, I'm barely touching it... just lightly grazing the skin... and it hurts. This isn't normal. This also seems to be in the same area where I get bad pains in my arm/elbow. Are these all symptoms of TOS too?

I'm so frustrated at this point... I just want to feel myself again... and if it weren't for this constant weird feeling in my head, today I would feel almost 100% as I'm not really have any other pain. (Except for the back, but I can deal with that.)

I just don't know.
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Old 01-04-2008, 06:17 PM #32
Missa Missa is offline
Junior Member
 
Join Date: Dec 2007
Posts: 27
15 yr Member
Missa Missa is offline
Junior Member
 
Join Date: Dec 2007
Posts: 27
15 yr Member
Thumbs up

I made an appt. with East Coast Pain Management today and they can get me in as soon as next Thursday! I am so happy!

I have one more test to do on the heart to completely rule it out and then from there my doc said he would start looking into some muscular things. I made the appt. because I've been referred by almost every doc to eventually see a pain management specialist. These docs (at this specific place) will look into things like myofascial pain syndrome and fibromyalgia. If I don't have TOS then I am almost positive that I will be diagnosed with one of those two conditions. Either way, I will be happy for a diagnosis and actually be on my way to leading a semi-normal life again. For me, the worst is not knowing. The ECPM will also be able to properly treat me for these conditions as well and lucky me, they are in the same town that I live in!

I am just so happy to be making some progress!!
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