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Our Top 5 TOS symptoms

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Old 11-04-2011, 12:37 AM #1
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Quote:
Originally Posted by chroma View Post
What were the top things that reduced the spasms that pulled on your c spine?
I suppose it was expert chiro, very good PT, all the self care/posture stuff & being off work.
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"Thanks for this!" says:
chroma (11-04-2011)
Old 11-03-2011, 10:12 PM #2
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O boy this sounds fermilyour
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Old 04-24-2008, 06:33 AM #3
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Top 5.. where do I begin.


Deep aching, horrible pain in arms from shoulders down to wrists to fingers
Neck pain, neck feels too weak to hold head up.Collarbones on fire and pain around front of throat up to bottom lip and up to ears. I used to describe the pain as if diggers where going up and down arms. Hands/fingers now won't staighten and little finger hurts alot.

Nausea

Sensation loss

Sleeplessness/lethargy/fatigue

Anything that requires arm/hand action...easily fatigued and increase in pain


I will stop there. My pain was initially helped a little by lying flat then only a little..now sadly I cannot lie flat due to Phrenic nerve issues but I do find myself trying to get lower to help pain. Sitting up is not nice.


Hello and best wishes to everyone.
Take care
Hx
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Old 03-15-2009, 12:50 PM #4
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Bumped and for updates.

If anyone wants to do an update on any symptoms please do so.
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Old 11-27-2010, 06:34 PM #5
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bump up for new readers
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Old 12-12-2010, 09:54 AM #6
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Default my top 5..
1-nerve pull sensation at base of neck where cervical rib is
2-ache/pain down arms
3-ache/pain up neck into ear & jaw
4-stabbing pain in shoulderblades
5-restricted ability to move arms overhead
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Old 11-04-2011, 11:58 AM #7
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TOS is a dx of elimination. I was told there is no "tell tale sx" specific to just TOS. That's why it's so hard to get dx'd.

Yesterday some idiot neurologist told me that TOS doesn't cause PAIN!!!!! I told that it does cause pain and there are alot of us with TOS who know this to be true. I'm so tired of "doctors" who think they are God and who don't have the knowledge they think they have.
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Old 03-01-2013, 10:07 AM #8
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TOS causes pain so high that some of us have considered suicide. We talk to eachother and comfort eachother because some of the neuros are nuts. I was in a hospital for TIA watch and the neuro put her dirt shoes on my bed, shook it as I screamed, and told me, "well, the only thing you can do is go to Germany and get a Ketamine "wash" of my spine.

There are TOSers here who can tell you whether Germany was worth the cost!!!

Watch your blood sugar.

NOW i am on oxygen, as my blood oxygen during the night dropped dangerously low.

The injury is the most painful and misunderstood condition, and the CDC doesn't even have a head count!

ONE BLESSING, it is cyclical, and if you get to know what works for you, and what doesn't, you can keep trying.

Get a work com attorney and ask your doctor for home health aide. I thought I was going to die a month ago, and my nurses helped me back to life.

Bless you all.
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Old 07-08-2013, 02:58 AM #9
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As far as I know, symptoms are different for everyone. There is no definitive test that can say you have TOS and no definitive "symptom" either.

For me:

5. numb pinkies / half of ring finger
4. pressure/pain in forearms and inner side of elbow
3. immediate loss of blood flow when arms are bent or overhead
2. extreme nerve screaming in entire arms (i work real hard to avoid this)
1. finding oneself, without even thinking about it anymore, avoiding most activities in life
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Old 12-15-2010, 08:50 PM #10
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Quote:
Originally Posted by tshadow View Post
TOP 5 SYMPTOMS – New Symptoms In Bold Italics

1. Constant pain in R forearm, hand, shoulder, side of neck and shoulder blade.
HAND SIZE WENT FROM 8 TO 8 1/2 TO SIZE 11 IN RING SIZE.

2. Feeling of swelling in R arm, especially hand. Feeling of swelling in both hands, forearms, neck, cheeks, ears and ear areas, back of head, shoulders (all of this bilat, less when in bed propped with multiple pillows and more when any physical movement.

3. Tired. Extreme fatigue daily, requiring daily multiple naps, interspersed with nights of inability to sleep due to 8-10 pain, sleep is usually only several hours at most due to pain.

4. Inability to use R hand / arm normally. Right hand trembles, loss of use almost completely after initial exertion. Left hand has some use, but with extended exertion also loss of use.

5. Head aches, especially related to the neck muscles and behind the right eye. Headaches are still daily, disabling, and include several migraines per month, and include pain to the jaw, (bilat), behind the eyes, up the side of the face, and ears.
Wow I can relate to this( I had these symptoms for 4 months)...I was sent to PT for biofeedback treatment a neuromuscular retraining. I am also on Ametriptaline much improved at this point but I am out of work so time will tell.
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