NeuroTalk Support Groups - Our Top 5 TOS symptoms

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- Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)

- - Our Top 5 TOS symptoms (https://www.neurotalk.org/thoracic-outlet-syndrome/35492-top-5-tos-symptoms.html)

For me it was the muscle tightness and then the spasms caused pulling on my c spine vertebra - that caused the vertebral artery symptoms.
a chart about it on this page-
http://www.tos-syndrome.com/old1/newpage12.htm

1-nerve pull sensation at base of neck where cervical rib is
2-ache/pain down arms
3-ache/pain up neck into ear & jaw
4-stabbing pain in shoulderblades
5-restricted ability to move arms overhead

Quote:

Originally Posted by tshadow (Post 184115)

TOP 5 SYMPTOMS – New Symptoms In Bold Italics

1. Constant pain in R forearm, hand, shoulder, side of neck and shoulder blade.
HAND SIZE WENT FROM 8 TO 8 1/2 TO SIZE 11 IN RING SIZE.

2. Feeling of swelling in R arm, especially hand. Feeling of swelling in both hands, forearms, neck, cheeks, ears and ear areas, back of head, shoulders (all of this bilat, less when in bed propped with multiple pillows and more when any physical movement.

3. Tired. Extreme fatigue daily, requiring daily multiple naps, interspersed with nights of inability to sleep due to 8-10 pain, sleep is usually only several hours at most due to pain.

4. Inability to use R hand / arm normally. Right hand trembles, loss of use almost completely after initial exertion. Left hand has some use, but with extended exertion also loss of use.

5. Head aches, especially related to the neck muscles and behind the right eye. Headaches are still daily, disabling, and include several migraines per month, and include pain to the jaw, (bilat), behind the eyes, up the side of the face, and ears.

Wow I can relate to this( I had these symptoms for 4 months)...I was sent to PT for biofeedback treatment a neuromuscular retraining. I am also on Ametriptaline much improved at this point but I am out of work so time will tell.

nausea is a weird one

i didnt experience that until this weekend but ti was bad

I guess I'll give it a whirl:

1) constant burning pain in shoulder
2) pain when holding arms out or up. hand cramps up (claw) when lifting arm over head.
3) stabbing pain in shoulder blade
4) general pain all over my shoulder and upper arm
5) slowness or loss of dexterity in right hand, feeling of swelling in hand.

only five? I could go on and on... :)

O boy this sounds fermilyour

Quote:

Originally Posted by Jo*mar (Post 723806)

What were the top things that reduced the spasms that pulled on your c spine?

Quote:

Originally Posted by chroma (Post 821673)

What were the top things that reduced the spasms that pulled on your c spine?

I suppose it was expert chiro, very good PT, all the self care/posture stuff & being off work.

TOS is a dx of elimination. I was told there is no "tell tale sx" specific to just TOS. That's why it's so hard to get dx'd.

Yesterday some idiot neurologist told me that TOS doesn't cause PAIN!!!!! :rolleyes: I told that it does cause pain and there are alot of us with TOS who know this to be true. I'm so tired of "doctors" who think they are God and who don't have the knowledge they think they have.

TOS causes pain so high that some of us have considered suicide. We talk to eachother and comfort eachother because some of the neuros are nuts. I was in a hospital for TIA watch and the neuro put her dirt shoes on my bed, shook it as I screamed, and told me, "well, the only thing you can do is go to Germany and get a Ketamine "wash" of my spine.

There are TOSers here who can tell you whether Germany was worth the cost!!!

Watch your blood sugar.

NOW i am on oxygen, as my blood oxygen during the night dropped dangerously low.

The injury is the most painful and misunderstood condition, and the CDC doesn't even have a head count!

ONE BLESSING, it is cyclical, and if you get to know what works for you, and what doesn't, you can keep trying.

Get a work com attorney and ask your doctor for home health aide. I thought I was going to die a month ago, and my nurses helped me back to life.

Bless you all.